Batten disease claims the lives of most children and teens carrying this disease.
Our mission is to raise awareness and money through Project Sebastian for life-saving Gene Therapy Replacement. This therapy can save our son Sebastian's life and many others. Our goal is to raise $3.5 million. Help us get there.
There is now a virtual race for this event!! Now you can run where ever you live! Anywhere in the world!! So now you can help us fundraise and create more awareness than before!
Event details and schedule
Saturday, June 6th, 2020
West Creek Park
Registration opens up at 7a
Warm-up with DJ at 845a
The race begins at 915a
Awards and post-ceremony at 11a
Silent auction 7-1030a
Dress race/run casual
Parking on and off the property