One Love One Heart Virtual 5k
All proceeds will go directly to the CdLS Foundation
The 5k is now run by Hannah Pomfret, Maya's sister, and Kira Czech, a close family friend!
*CdLS Immediate Family Members register FREE *
CdLS Immediate Family Members inlclude Moms, Dads, Brothers, or Sisters. Immediate family of an individual with CdLS register free but still need to register.
The One Love One Heart 5k is VIRTUAL
“One love refers to the universal love and respect expressed by all people for all people”.
Event details and schedule
Warm up on January 8th-10th, 2021 with a 5k to benefit the CdLS Foundation!
$25 Early Registration by January 1, 2021
$30 After January 1, 2021
*Immediate CdLS family members have free entry*
From January 8th to 10th, 2021
Find a time that fits your schedule to run the 5k!
T-Shirt Pick Up
Runners who live near or in Decatur GA will be able to pick up their race day shirts on January 8th-10th from 2-6 ! Please wear a mask during pick up !
Pick up Location: 744 Avery St. Decatur, GA 30030
Runners who are out of state or unable to pick up will have your shirt mailed to your address *no guarantee race shirt will be delivered before race day starts*
REWARDS: gift cards for Overall male and female, overall masters male and female, top male and female in each age group!
Cornelia de Lange Syndrome (CdLS) is a genetic disorder present from birth, but not always diagnosed at birth. It causes a range of physical, cognitive and medical challenges and affects both genders equally. CdLS does not discriminate—it’s seen in all races and ethnic backgrounds. The occurrence of CdLS is estimated to be 1 in 10,000 live births.
Through a variety of research programs and activities, the CdLS Foundation plays a major role in advancing clinical and basic scientific knowledge about the syndrome.
The CdLS Foundation is a national non profit organization that supports all people with CdLS as well as their families.