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Rare Disease Day 2018 Virtual Race

Thursday, February 1, 2018 - Wednesday, February 28, 2018
Anywhere 1 Anywhere Way Any CityMD  20902
Thursday, February 1, 2018 - Wednesday, February 28, 2018
Anywhere 1 Anywhere Way Any CityMD  20902
Virtual 5K, 10K or Half - US Rare Disease Day 5K, 10K or Half
$28.00
Virtual 5K, 10K or Half - US Rare Disease Day 5K, 10K or Half
$28.00
Virtual 5K, 10K or Half - Outside of US Rare Disease Day 5K, 10K and Half
$42.00
Virtual 5K, 10K or Half - Outside of US Rare Disease Day 5K, 10K and Half
$42.00
Virtual 5K, 10K or Half - Fundraising Only
$0.00
Virtual 5K, 10K or Half - Fundraising Only
$0.00

About This Activity

Join us for the 3rd annual Rare Disease Day virtual race sponsored by Running On Air and benefiting the National Organization for Rare Diseases (NORD) and the PCD Foundation.   Participants receive a beautiful medal based on the Rare Disease Day logo. The hands have a stained glass effect.  The first 100 registrations will also get a bib number specifically designed for this event.  You can create teams and/or become a fundraiser.  

We are giving away 3 prizes for US residents only:

1.  All US residents who register for a medal by December 31 will be entered into a drawing for a $50 gift certificate to Spreadshirt.*

2.  All US team captains with teams of 5 or more will be entered into a drawing for a $25 gift certificate to Spreadshirt.*  While team captains need to be US residents the team members do not have to be US residents.

3.  All US fundraisers raising $500 or more through the fundraising page provided through registration will be entered into a drawing for a $25 gift certificate from Spreadshirt.*

Share your event pictures and event details on https://www.facebook.com/RunningOnAirO2/ and use #RareDiseaseDay. We'll share to inspire others to make a difference and have fun in the process.

T-shirts and other items are available on NORD's Spreadshirt shop:

https://shop.spreadshirt.com/NORD/rare+disease+day?q=T296881

 

There are nearly 7000 rare diseases.  A disease is considered rare in the US when there are less than 200,000 people with a diagnosis.  Your participation in this event will help to make a difference for the more than 25 million Americans living with a rare disease.

You can choose how far you want to walk or run to complete this event, whether it’s a 5K, 10K or a half marathon.

This event is organized by Running On Air, which is not affiliated with NORD or the PCD Foundation. A portion of the profits from this event will go to NORD and the PCD Foundation. All fundraising money goes directly to the charity selected.

* We reserve the right to change the place for the gift certificate if necessary.  The amount will stay the same.

Event details and schedule

As a virtual event, you can complete this race anytime in February.  The distance is your choice.

Medals will be shipped in February.

One of Running On Air's missions is to raise awareness of rare diseases.  The founder, Mary Kitlowski, and her sister, both have a rare disease called Primary Ciliary Dyskinesia (PCD).  There are less than 1000 people diagnosed with PCD in North America, although it is estimated that around 25,000 people in the US may have the disease.

NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.

The PCD Foundation is a patient-focused organization, whose mission is to provide the leadership and resources needed to support increased research, accelerated diagnosis, improved health and, ultimately, a cure for primary ciliary dyskinesia

Like and follow Running On Air on Facebook, Twitter (Mary_RunOnAir) and Instagram (RunningOnO2) to keep up with the latest news on upcoming virtual races.

Organizer Info

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