What is Friedreich's Ataxia?
Friedreichs ataxia (FA) is a debilitating, life-shortening, degenerative neuro-muscular disorder. About one in 50,000 people in the United States have Friedreich's ataxia. Onset of symptoms can vary from childhood to adulthood. Childhood onset of FA is usually between the ages of 5 and 15 and tends to be associated with a more rapid progression. Late onset FA (LOFA) can occur anytime during adulthood. FARA is supporting research that will improve the quality and length of life for those diagnosed with Friedreich's ataxia and will lead to treatments that eliminate its symptoms.
All FARA FEST proceeds will benefit the Friedreich's Ataxia Research Alliance (FARA). The Friedreich's Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedreichs ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceutical/ biotech drug development, clinical trials, and scientific conferences. FARA also serves as a catalyst, between the public and scientific community, to create worldwide exchanges of information that drive medical advances.
Event schedule and times
Early Packet Pickup Friday May 31st
Buffalo Wild Wings (Landstown Commons) Princess Anne Rd. Virginia Beach
11am-9pm. If you plan to stay and eat, all dine in sales will be donated to FARA if you mention FARA FEST to your server. Please invite friends and family to participate.
Sunday June 2nd
Virginia Beach Sportsplex
Packet Pick up/Registration 12:30-1:30
1 mile Fun Run 2:00
CureFA 5k 2:30
Finishline Celebration 2:30-6pm