LNS Run/Walk/Roll

Date

Start: Sunday, October 20, 2013

Address
Licking Heights High School 4000 Mink Street
Pataskala , OH 43062
Registration Closing Date

Saturday, October 5, 2013

Organizer's Website

http://lnscentralohio.webs.com/

About This Activity

Lesch-Nyhan Syndrome (LNS) is a rare metabolic disorder that affects mostly boys, who are confined to wheelchairs, which is why we are using the term roll, for this event.  It is virtually unheard of, even in the medical community, leaving kids to go years with no or misdiagnosis.  Unfortunately, there is no cure and little treatment for the unusual symptoms associated with the disorder, including self-injury, gout and kidney issues.  The goals of the foundation are to assist families who have been recently diagnosed, to encourage parent advocacy, to raise awareness within the medical community and to give LNS families hope and support on their individual journeys.  

Event schedule and times

Sunday, October 20, 2013 starting at 9:00am - late registration begins at 8:15am

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