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September 25, 2010

My 100 Mile Ride to Save Lives

On September 12, I will embark on my first 100 mile bike ride to bring hope to thousands of patients affected by two debilitating kidney diseases, Nephrotic Syndrome and Focal Segmental Glomerulosclerosis (FSGS).

What is FSGS? I first learned about this disease through my friend Michael Levine. His six year old son, Matthew, was diagnosed with FSGS when he was only three years old. For a period of time, Matthew woke up with swollen eyes which doctors believed to be allergies. A urine analysis later on revealed high protein levels. Instead of retaining protein, the ‘good stuff,’ Matthew’s kidneys were not filtering the body’s waste properly. Matthew was immediately taken out of school and his parents received the shocking message that their sons may have kidney failure. FSGS is the second leading cause of kidney failure in children and targets adults as well.

To date, there is no effective treatment or cure and there are no FDA approved drugs to treat FSGS. When treatment with steroids and other drugs fails, patients face harsh dialysis regiments or require a transplant. In many cases, the disease reoccurs after a transplant. As of April 20, 2009, 4,031 FSGS patients were waiting for a kidney transplant. Of these 4,031 individuals, 731 had already received at least one transplant which had failed. Together, we will save kidneys and to save lives.

Your tax-deductible donations will support the mission of The NephCure Foundation (EIN 38-3569922, www.NephCure.org). NephCure is currently the only organization exclusively committed to support research seeking the cause and cure for FSGS and Nephrotic Syndrome. There are actually more people with these than Cystic Fibrosis which is why we need greater awareness.

NephCure provides educational programs and raises money to fund research which will lead to effective treatments for Matthew and thousands of others who share his story.

Please donate and forward the link of my page to your friends.

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Fundraising has ended.

Total Donations: $12,925.00

Contributor	Amount	Comment
Mario Sclafani	$100.00	*

Blake And Hanna Friedman	$100.00	"Good Luck to my crazy brother"

Victor Friedman	$100.00	"Hope for a cure soon"

Friedman Family	$1,000.00	*

bruce irom	$100.00	*

JASON ZWIBEL	$100.00	*

Jason Katz	$250.00	"Glad to have a riding partner! I don't know what looks smaller, the putter in your meat hook hands or a bike under your giant frame! JayMax"

Vanessa and Scott Goldstein	Hidden	*

Andrew Etter	Hidden	"Dean-Oh!!!!!!!!!!!!!!!!!!!!!"

Marc Rona	$100.00	*

Brian Sivin	Hidden	"Good luck Dean, and thanks so much for your support."

Peter Hess	$100.00	*

troy gregory	$250.00	*

Erik & Elyssa Harris	$100.00	*

Michael Forrest	$100.00	*

Daniel Katz	$50.00	*

Gary Morris	Hidden	"Love it. Good luck Deano!"

Jordan Goldman	$250.00	"Good Luck Dean!"

Sean & Stacy Seigel	$75.00	"Best of luck. Enjoy the ride!!!!"

Hazen Family	$500.00	*

Lara & Hal Pasetsky	Hidden	"What a great cause, good luck Dean!!"

Michael Nemeroff	Hidden	*

Allan Solomon	$40.00	*

Todd Lenson	$50.00	*

amanda feinsod	$100.00	*

Mackenzie Friedman	$50.00	"I am proud of you big bro. Love you and hope this helps."

Carole Friedman-Christiano	$50.00	"I am so proud of you and wish you a super start and a great finish! Good luck and you are a winner! Love Mom"

andrew gozinsky	Hidden	"good luck dean"

Darryl & Matthew Abramowitz	$250.00	*

Allyson & Steven Shapiro	$250.00	*

felice semegram	$100.00	"Dean- Thank you for all you are doing for Matthew, Cole, and all the other people out there who suffer from these diseases- The Semegram Family"

Alyssa Shabsels	$1,000.00	"Good luck! We're happy to support you."

eric aroesty	$500.00	*

Robert Alfano	$250.00	"Have an awesome ride."

ira newman	$100.00	"awesome job dean, have a good ride"

Craig Paris	$100.00	*

Sanford Morris	$50.00	*

David and Donna Pelton	$360.00	*

Syndicated Capital	$100.00	*

Rene Lachapelle	$250.00	*

ANDREW WEISSMAN	$100.00	"RIDE HARD DEAN, MONGE CAN FLY HE IS REALLY MIGHTY MOUSE. CAN MY DONATION BE IN CHIPS."

Steven Rogers	$100.00	"Best of luck. Hope it is downhill most of the way. "

Mark Levitt	Hidden	"Very cool that you are doing this. I'll be there with you, every pedal of the way.... from my couch with a drink in my hands...."

Willy Gantner	$100.00	*

michael levine	$500.00	"dean, you are the man!!!!!!!! best of luck on the ride. you are an angel on matthews shoulders. we cannot thank you enough. just maybe with your help we will find a way to beat this thing. thanks very much. the levine, sivin and frank families."

rick harris	$100.00	*

steven friedman	$100.00	*

David and Amy Kates	$100.00	"We wish you the best of luck!! Enjoy your day!!"

Adam Popper	Hidden	"Dean, Good Luck next weekeend. We will be rooting for you! The Poppers"

Gregory Frank	$100.00	"Glad to support you Dean...enjoy the ride."

Lance Landau	$250.00	"Good Luck Ilyse,Lance,Harry and Jesse Landau"

gary salmirs	$100.00	"way to go Dean! i am with you all the way man! "

Anonymous	Hidden	*

Ray Brill	$100.00	*

Anonymous	Hidden	*

Mr and Mrs. Hernandez	Hidden	"After the race come to my coin gallery-good luck!"

Alan Cooper	$500.00	*

Brandon Schwalbe	$100.00	"Good Luck!!"

Kyle Mowbray	$1,000.00	*

Julie Sheppard	Hidden	"Good luck.."

RICH COPELL	$100.00	*

Brett Sturm	$50.00	*

john johnson	$100.00	*

brian gordon	$100.00	*

Rob Barden	$100.00	*

marc finkelstein	$500.00	*

philip barres	$100.00	*

Tom Costa	$50.00	*

craig faller	$100.00	*

Mats Wedlin	$50.00	*

Lawrence Margolis	$250.00	"Congrats Dean!"

John Kenyon	$100.00	*

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