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| Seth's MPS/ML love fund |
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| Our son, Seth, is 6 yrs old and has a rare genetic disorder called Mucopolysaccaridoses Type II-A (aka Severe Hunters syndrome)
MPS and ML are rare genetic lysosomal storage disorders that limit or prevent the body’s ability to produce certain enzymes needed for breaking down and recycling dead cells. These disorders cause progressive damage throughout the whole body severely diminishing the quality of life as well as dramatically shortening the life span of those affected. There is NO cure for MPS or ML. Prognosis for MPS II-A is 10-15yrs old.
Seth’s life has been a medical fight for him since the day he was born. This past year alone he has overcome an acute blindness, he has had 2 shunt placements (devices that are surgically implanted to control pressure on the brain), 4 shunt revisions, and has had 2 hernia repairs. He now suffers from severe hearing loss, neuromuscular atrophy, bone degeneration, joint pain/stiffness, developmental delay, Anisocoria, and neurological degeneration. With all of this, he has been so strong. He has a smile that lights up everyone’s day.
Please help us continue to provide the best quality of life for Seth. By donating you will be helping us provide dietary supplements, pay medical expenses, make home modifications for Seth, and give Seth the chance spend time with other kids affected with MPS by taking him to future MPS conferences and MPS family gatherings that are held all over the US. |
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Total Donations: $0
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