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| Dash for Duchenne |
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| This disease is the number one lethal genetic disorder of children worldwide. It is a progressive muscle disorder that causes the loss of muscle function and independence. Boys affected by Duchenne, lose the ability to walk between the ages of 8 and 12, require respiratory support by their late teens and survive only into their twenties. One-third of all cases of Duchenne are the result of a spontaneous genetic mutation…which means this could happen to anyone. There is a 100% fatality rate.
One would think with these statistics there would be a strong standing of financial support. However, just the opposite is true. This disease is severely overlooked and underfunded. Therefore, most research for Duchenne is funded through grass-roots organizations similar to that of Ryan’s Quest who depend on the mere generosity of others and fundraising efforts to support the advancements that are being made.
Please join us in this "Quest" to end Duchenne muscular dystrophy. |
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