| Jack is a kind, energetic, inquisitive, adorable five year old who also has NF. He is a fantastic big brother, and loves playing with Luke, his cousins and his friends. He makes his parents so proud every day. He enjoys going to school and loves magic, swimming, and karate. He started holding a guitar and singing Johnny Cash tunes when he was barely old enough to talk. He is a big fan of the Red Sox (don’t even mention the word Yankees to him), cheers for Tom Brady, and knows every word to the University of Michigan fight song (Go Blue!). He is blessed to be loved and cherished by many.
Jack was two years old when he was diagnosed with NF. He currently has a plexiform neurofibroma (a more complex tumor) in his left eye orbit, and is being closely monitored for changes in his optic nerves and certain areas of his brain. He has had numerous MRIs, and countless tests and doctors’ visits. Jack works hard everyday to become stronger. Like others living with NF, we do not know what the future will bring for Jack.
When we were first told that Jack had NF, we did the requisite research, leaving us terrified and devastated. While our beautiful toddler peacefully slept in his crib, we read what we could possibly expect: Tumors. Deformities. Learning Disabilities. Cancer. Vision loss. Pain. Death. No Cure. No Effective Treatment. Not our baby. Not our Jack. Since that time, we have realized that the one thing we can control about NF is our decision to do our part to find a cure. We have been comforted by finding support from the NF community, but we all need your help. Any funds that you donate are contributed directly to Children's Tumor Foundation's Drug Discovery Initiative. The fight continues. Cure NF with Jack. For more information and to learn more about NF, please visit www.curenfwithjack.com. |
