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Cole's Crew Racing 4 Research
Help us Fuel The Cure for NF
My name is Cole Rutter. I am 12 years old. When I was only a few weeks old, I developed café-au-lait spots all over my body. They looked just like birth marks, so my parents were not too worried. But within a year, my doctor started measuring and charting my “birthmarks.” When I was two years old I was sent to Children’s Memorial Hospital, where I had my first of more than a dozen MRIs. That first MRI showed that I had an optic glioma. An optic glioma is a type of tumor that grows on the optic nerve. My tumor has remained stable, but these types of tumors can cause blindness. I was officially diagnosed with neurofibromatosis (NF). There are different kinds of NF, but I have NF1. NF1 can cause tumors to grow on nerves anywhere in the body, and can also cause a lot of other problems like blindness, brain tumors, high blood pressure, headaches, cancer, learning disabilities and severe chronic pain. NF is the most common neurological disorder caused by a single gene. It is a highly variable and a progressive disorder. NF has affected me in different ways. My leg muscles are not very strong so it is hard for me to run fast or jump. I have scoliosis and wear orthodics in my shoes to help my back and make my legs stronger. Like many children with NF, I have ADD. I have High Blood Pressure and take medication every day so that it doesn’t get to high. I get a lot of headaches and many times my skin itches. All of these are caused by my NF. But of all the things that NF can do, I am most afraid of the tumors that I might get. A few summers ago we learned that I had a tumor on my jaw. NF can cause tumors to grow anywhere in the body. It looked like I had a giant gumball in my mouth. I was lucky. My tumor was removed and so far there is no sign it is growing back. I also may have a small tumor in my brain. My parents and doctors tell me that like most NF tumors, mine are not malignant, which means I do not have cancer. But I know that people with NF are more likely than others to have malignant tumors, so there is a chance mine could turn into cancer. That scares me, so I try not to think about it too much. Also, NF tumors can cause problems even if they are not malignant, depending on how big they are and where they grow. Although I do not like having NF, I have not let it stop me from doing many things I like to do. I love to play sports, especially baseball. I am involved in both spring and fall baseball and routinely “sneak” to my basement to work on my pitching every chance I get. There are many things about having NF that are actually fun. For example, I am very excited about being an NF Hero and being able to go to the Rolex 24 Hour race in Daytona, Florida. I will get to spend time with other kids that have NF, meet the race car drivers, sit in a race car, and have a great time just watching the race. We have a car with the logo of the Children’s Tumor Foundation, and the names of me and other “NF Heroes” are written on the side of the car. Right now, there is no cure for NF. The Children’s Tumor Foundation gives money to scientists who can test medicines that might stop the tumors from growing, or stop other problems that come with NF. I want to help find a cure so I don’t have to worry any more, and no one else has to suffer from NF. I am hoping you will join my efforts, make a donation, and help us find a cure! Please take a moment and visit www.CTF.org to learn more about NF and then become part of our "Crew" as we race to Daytona. Visit us on Facebook - http://www.facebook.com/pages/Coles-Crew-Racing-4-Research/168337943183489

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Fundraising has ended.

Total Donations: $3,610.00
Goal: $6,500

$0 56% $6,500
Goal

Contributor Amount Comment
JON PIERCE $50.00 "Good Luck Cole!"
Edwin Landon $100.00
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marcian deisenroth Hidden "Hi Cole, Congratulations on your being chosen for such an honor. You deserve it. Good luck in all you doing and know that there are a lot of people praying and rooting for you. GO COLE marcian"
Jennifer Henze Hidden
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Terri Carpenter $100.00
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Jolene Melles $25.00
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Cindy Kruse $25.00
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Gayle Copenhaver $35.00 "Cole, you are one great guy and I will be praying for you and a cure !!!"
Cindy Browning Hidden
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Nick Weis $25.00 "Good Luck Cole! My family will be praying for your health!"
joanne schmitt $15.00
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Joe Mabbett $100.00
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Pat Graceffa $25.00 "Good Luck Cole!"
Ruth Anne Osenberg $50.00 "Wishing you good luck Cole!!"
Darrell and Joyce Ashby $100.00
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Christopher Ott $100.00 "Good Luck Cole! Have fun at the races! "
Arlene Barrett $100.00
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John & Wanda Rutter $100.00
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Colleen Wehrmann $100.00
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Julie Bromann $25.00
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Linda Healy $100.00 " What a wonderful opportunity! "
Cynthia Cyr $15.00
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Anthony Brylewski $50.00
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Gordon & KIaren aSHBY $100.00 "Congratulations Cole, This is a wonderful honor to be able to be apart of, Good Luck and Have Fun..."
Wiley Overley $100.00
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Laura Perfetti $25.00 "Great Job Cole's crew!! Hope to meet you in Daytone:) Love Team Julia Ladybug"
Daniel Franck $25.00
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Stacey Hoeft $100.00 "Cole, What a special day for you, it sounds like a lot of fun; can't wait to see pictures. The Hoeft family"
Marlene Deck $50.00
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Peter Darata $50.00
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Anonymous $135.00
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Jim Catalano $100.00 "Good Luck Cole!!!!"
Erika Krouth DDS $100.00
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John and Diana Grimes $50.00
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Sandra Bowles $15.00
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Jennifer and Jason Hass $50.00 "Have fun on race day Cole! "
Teri Bornack $25.00 "CONGRATS!! Have a GREAT time!!!"
Donna Peterson $15.00 "Have a great time, you deserve it! "
Lori and Bob McCaffrey $100.00 "Keep up the good work, Cole Train!"
Anonymous $100.00
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Karen Franz $25.00
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Renae Franiuk $25.00
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Shery Piercy $75.00
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Signature Bank $100.00 "Enjoy Daytona!"
Eric Feldman $25.00
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Paul Lopata $50.00
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Jim Slowik $25.00
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Clare Toynton $25.00 "Congratulations!!!!!!!"
Donald Levine Hidden
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Jon, Kyle, Grant & Cora Gingrich $100.00 "Good luck, Cole Train!"
Susan O'Neill $25.00 "Hi Cole, Good luck to you - hope you have a great time at the race! "
Judith Brown Hidden
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Pat Vary $15.00
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sean fox $25.00
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Suzanne McCracken Hidden
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Anonymous $25.00
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Cheryl Koll $50.00
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eric newman $100.00
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Stephen Brown $100.00
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John, Jacque, Ryan Jordan Bridge $200.00 "Go Cole !!!! Your a great kid ! Have Fun at the race."
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