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| Ray's Race for a Cure |
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| Raymond was diagnosed at about three years old with NF1. His doctor noticed the cafe au lait spots and he was seen by a specialist who noticed other criteria for NF1. He is currently doing well, and recently had a brain scan which came back clear. NF is a tricky disease with no known cure. Please help us find a cure. Neurofibromatosis 1 (NF1): also known as von Recklinghausen NF or Peripheral NF. Occurring in 1:3,000 births, web characterized by multiple cafe-au-lait spots and neurofibromas on or under the skin. Enlargement and deformation of bones and curvature of the spine (scoliosis) may also occur. Occasionally, tumors may develop in the brain, on cranial nerves, or on the spinal cord. About 50% of people with NF also have learning disabilities. |
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Total Donations Collected:$995.00
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| Goal: $2,500 |
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Sorry.
Fundraising has ended.
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