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| Delaney Watts's Fundraising Page |
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| This is Delaney, our first born, our first and only daughter. She is the only granddaughter, the only niece and the only sister among our family. And she is the first and only to have Neurofibromatosis Type -1. She developed hers through a mutated gene. Our lives have never been the same since.
Delaney was diagnosed at her annual exam at age 3 due to number of café au lait spots and freckling in her groin area. We were and still are devastated with the diagnosis and very confused on why we had never heard of it before. Although we have been fortunate so far that Delaney has been healthy and only had to have 1 tumor removed. There is not a day that goes by that our daughter has NF-1 is not on our minds.
See ,the problem with NF-1 is the uncertainty of it. Every time she has a headache or complains that her leg hurts, you think...”is it a tumor?”. You keep track of how many days it lasts or how frequently she gets them. You find yourself constantly checking for tumors on her body. You constantly worry and wonder what the future holds for your beautiful and bright daughter.
Chances are you know someone with Neurofibromatosis. It effects 1 in 3000 births. It could be anyone’s child or next child or grandchild. It causes tumors to grow on the nerves anywhere in the body, including the brain and spine. It causes blindness, deafness, disfigurement, learning disabilities, cancer and many other issues. Delaney goes for annual CAT Scans on her spine & brain. She thinks it is the norm to have a IV put in and never complains. She thinks only special kids get to have pictures taken of their brains. We think she is right, cause she is a very special little girl.
We hope by raising money for NF, we can find a cure and raise awareness. This disease is more prevalent than cystic fibrosis, but yet no one has heard of it. So please help us spread the word on NF and work to finding a cure. |
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Total Donations Collected:$11,010.00
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| Goal: $7,500 |
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Sorry.
Fundraising has ended.
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