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NF Endurance | It's In You, It's Possible!

Brendon & Kirstin Lynch's Fundraising Page

Riding for a cure to Neurofibromatosis

Please help us find a cure for the many children suffering from the debilitating, disfiguring, painful and lifelong consequences of Neurofibromatosis (NF). We are in awe of our brave son Hayden who is afflicted by this disease. Hayden is only seven years old yet he has already undergone more physical and psychological challenges than most of us will experience in our lifetime. He has multiple brain tumors, a spinal cord tumor, an infiltrating tumor on his shoulder and numerous small tumors developing on nerves under his skin. Hayden also suffers from learning disabilities, difficulties with eating and swallowing, is significantly underweight, vomiting and headaches (likely from increased inter-cranial pressure), constant pain and itching, fatigue and concentration issues, generalized weakness and significant gross and fine motor deficiencies due to NF.

In an attempt to treat the brain tumors that pose a risk to his life, Hayden has had 18 months of chemotherapy. It was not successful (all the tumors continued to show signs of growth and in addition he grew another brain tumor while on chemo). Therefore, Hayden undergoes MRIs under anesthetic every three months to monitor their growth (we have been told by oncologists that Hayden will be on and off chemotherapy for the rest of his life). When the tumors grow again, Hayden’s next course of treatment will probably be a clinical trial drug. We live in fear of what will happen as Hayden gets older as tumor growth typically accelerates during puberty and NF is a progressive disease with no fixed path of clinical presentation. There is no cure for NF. Please help us fund new treatments for Hayden and millions of other children afflicted with this shockingly under-resourced disease.

We have decided to form a team to ride the 200+ miles from Seattle to Portland on July 17/18, 2010 to experience what is likely a small fraction of the pain and fatigue that our Hayden experiences on a daily basis. We dearly hope you will join us, and the rest of our courageous team (“Hayden’s Team”) in supporting research that will ultimately benefit Hayden and two million other children around the world. Thank you so much for your support and generosity. Oh, and for those of you with employer 'matching gift' programs, please don't forget to ask for your donation to be matched by your employer! Brendon & Kirstin Lynch

Total Donations Collected:$20,055.00

Goal: $15,000

134%

$15,000
Goal

Below is a video from the Children’s Tumor Foundation that demonstrates how your support benefits nearly 2 million people worldwide that are affected by Neurofibromatosis. I hope you’ll please take a few minutes to watch the video and perhaps be as motivated as we are to support The Children’s Tumor Foundation.

Adobe Flash Player is required to view video.

Contributor	Amount	Comment
Kate Burrows	$25.00	"Can't believe you are mad enough to do this challenge again!!! Best of luck let's just hope the money helps them find some sort of medication to delay / relieve the symprtome. Love to you all xx"

Ian Burrows	$25.00	*

Giles Thorpe	$100.00	"best wishes from Giles, Sarah, Charlie and George"

Sally Vicaria	$50.00	*

Jaime Menold	$50.00	*

Kevin and Camiekae Lynch	$100.00	"Kirstin, Brendon, Hayden, and Charlotte: Our thoughts and prayers are with you always! Kevin and Camiekae Lynch"

Paul and Lisa Bialek	$100.00	*

Lois & George Meng	$100.00	*

Bernard and Jean Bowden	$200.00	" Lovely photograph of our boy - we wish Hayden's Team every success on the day."

April James	$50.00	*

Anonymous	$100.00	*

Caroline Davies	$25.00	"Hi There Wishing you lots of luck. Love Caroline and Tony (friends of Erika)"

Carrie Hutton	$25.00	"For your brave fight against NF. With love, The Hutton Family"

Sue Glueck	$100.00	*

Malcolm Crompton	$100.00	*

Jules Polonetsky	$100.00	"My thoughts are with you"

Stan Crosley	$100.00	*

Allen Brandt	Hidden	*

CrisMarie Campbell	$100.00	*

carey stanton	$50.00	*

Frank Torres	$250.00	*

John Howie	$250.00	*

David Bowermaster	$100.00	*

Michael Hintze	$100.00	*

Irada Sadykhova	$100.00	*

John Trevor Hughes	$100.00	*

Jacqueline Beauchere	$100.00	*

Janice and Peter Cullen	$100.00	*

Debra Davidson	$25.00	*

Sarah Oliver	$15.00	*

Matt & Nicola Porton	Hidden	*

Serena and Murray McLaren	$25.00	"We are friends of John and Erika Brown. Good luck with the bike ride."

John Smitherman-Cairns	$150.00	"All the best guys - thinking of you all - the SC clan in Kent"

Laura Berry	$25.00	*

Annuska Perkins	$100.00	*

LaDeana and Mark Huyler	$250.00	*

David and Elizabeth Hoffman	$100.00	*

Gunnar and Shelagh Stoa	$100.00	*

Bill and Amy Linzbach	$50.00	*

ELIZABETH NORTHCOTT	Hidden	"We''ll be thinking of you. Hope you raise lots of money for this worthwhile cause. With love. Liz and Ray. xx"

Marit DeLozier	$100.00	*

Delight Roberts	$100.00	*

Sandra R. Hughes	$100.00	"Brendon and family -- thank you for sharing Hayden's story and for raising my awareness of NF-I had no idea about this terrible disease. I wish you the best of luck on the ride--both the bicycle and your brave personal journey. Sandy (and Bart)"

Ellen Kampel	$100.00	*

Chad Fletcher	$50.00	*

Erika Brown	$25.00	"Best wishes from Auntie S"

Erika Brown	$100.00	"Good luck guys lots of love Eri, Johnny, Lucy and Ben xxxx"

Dave Young	$100.00	"All the best from Gravity Janes!"

Deanna Armstrong	$100.00	*

Anonymous	$100.00	*

Megan Clark	$100.00	*

Gene Suna	$40.00	*

Sagi Leizerov	$100.00	*

Jon Waller	$100.00	"Such an incredibly brave boy. As are you all. We think about you all the time. Good luck for the bike ride. Get the bottom massages booked in now! Love you Lee, Jon, Coral and bump xxxxx"

Lisa Corran	$25.00	*

Joe & Shawna Borichewski	$100.00	"Brendon & Kirsten, In the short time we have known you we have been touched by your story and your courage. Hayden is an amazing boy and he is so lucky to have you for parents. You are constantly in our thoughts and prayers for strenght and most of all healing. Please let us know if there is anything we can do at any time. Joe & Shawna"

Brenda Wagner	$75.00	*

Kim Harris	$25.00	*

Philip Witney	$75.00	*

Chris Lou Max and Finn Mangos	$500.00	"Barring the storms and beers at the stopover, GO GO GO, let's beat last year's time, and let's beat this NF!!!!"

Tadhg & Cillian Whytock	$50.00	*

Dana Siverling	$100.00	*

Daphne Patteson	$50.00	"Thinking of you all. With Love from Daphne and Tim."

Beth Newkirk	$50.00	"Love the new picture of Haydon. "

Bowden Nigel	Hidden	"Thinking of all of you. Love Nigel, Janet and Jonathan"

George Papakyriacou	Hidden	*

Greg Fleming	$100.00	"Look out for bum blisters, GBN&D"

Paige Williams	$50.00	*

Beryl Owens-Garson	$25.00	"We hope this helps towards finding a cure! Good luck with your road race! From Beryl, Nick, Hayley & Tyler"

Anonymous	Hidden	*

Joanne Worsfold	$50.00	"Hi Kirstin & Brendon, so fantastic you are doing the cycle ride again this year. We hope lots of money will be raised for a very worthy cause though your amazing hard work. We will be with you in spirit on your journey giving all our love and support. Thinking of you all. We know you can do it! Lots of love and hugs. Jo, Martin, Samuel & Freya xxxx"

Angus Stewart	$50.00	"Hey Guys - with our very best wishes - stay strong, Cheers Gus & Lorns"

Tom and Julie Gurr	$50.00	*

Mary and Jim Scardino	$100.00	*

Tom Donohue	$50.00	*

Steve & Johanna Range	$75.00	*

Brian & Allison Spreadborough	$100.00	*

Heather & Ric Duenaz	$50.00	*

Linda Gilbert	Hidden	"Best wishes from John and Linda"

Toni & David Jennings	$100.00	"Good luck on your ride! Our thoughts and best wishes are with Hayden and your family"

Bron Craig Caylum Lyla & Dani Hudson	$50.00	*

Yvonne, Ella and Lilymae McGonigle	$50.00	*

David and Sue Stevens	$204.00	"Will be thinking of you as you ride. You are all such an inspiration!"

Kelvin Lynch	$250.00	*

Chauncy & Andrea Stark	$250.00	"Our thoughts are with you, eat lot's!!!"

Damien Hart	$50.00	*

David Painter	$250.00	"Great effort guys - all the best!"

Jennifer Conover	$250.00	*

Darbi Worley	$100.00	*

Meredith & Rainer Rogers	$150.00	*

Geoffrey Andrews	$100.00	"Hi Hayden, just wanted to say how impressed Nancy and I are with your bravery and that we're thinking of you. Love, Geoff Andrews and Nancy Gallagher (friends of Uncle Kelvin)"

Jeremy Hill	$250.00	*

Frank Janssen	$250.00	*

Michelle van der Veer	$250.00	*

The Calverley Family	$25.00	*

Mary Martello	$100.00	*

Ross Ormsby	$100.00	*

John Allen	$100.00	*

Anonymous	Hidden	*

Craig & Vanessa Donaldson	$100.00	"BIG Hugs to Hayden."

Antony Hill	$250.00	*

Dave,Tracy,Libby & Fergus Morrison	$100.00	"Great challenge for you all and a wonderful way to recognise Hayden's own challenges. Make sure Uncle Kelv doesn't try and slip stream!"

Rodney Brookes	$50.00	*

Kerry and Anna Stove	$50.00	"We are friends of Kelvin. Great cause. Good luck with the cycling! Our thoughts are with you."

Steve Cook	$250.00	*

Kate Crawley	$50.00	*

Anonymous	$1,000.00	*

Euan Findlay	$100.00	"Dear Brendon, Kirstin & Family, wishing you well with all your fundraising efforts and hoping that Hayden's future is as comfortable as possible. With three young sons of my own, I can only admire your bravery and fortitude under such incredibly tough circumstances. With best wishes, Euan Findlay & Family."

Caroline Mcguckian	Hidden	*

Alana and Sam Edwards	$100.00	*

Alper Ekmekci	$125.00	"You are in our thoughts, and we're all wishing you a better health soon. Keep your handsome smile and keep on smiling."

Stephanie Nardilla	$50.00	*

John & Patty Worley	$50.00	*

Nathan Godwin	$50.00	"From Kelvin's team at Credit Suisse in New York. Best of Luck!!"

Angela Johnson	$50.00	*

James Glover	$250.00	"Team Lynch is an inspiration to us all."

Kristi Molinaro	$25.00	*

Rick Wright	Hidden	*

Matt and JoJo Burgess	$100.00	"Kia Kaha guys, for the ride and for Hayden"

Peter and Flavia Powers	$100.00	*

Steven & Emma Zizic	$100.00	*

John Mawer	$50.00	"As good friends of Kelvin from England, we have been touched by your story and have tremendous admiration for the courage & love shown by your family. Good luck with the fundraising. John, Jackie & Charlie Mawer"

Frederick Faust	$100.00	*

rishi nangalia	$100.00	"From Kelvin's Amansala friends!"

Brendan O'Sullivan	$100.00	"don't put me on mailing lists please"

Carrie Chan	Hidden	*

Giarna TeKanawa	$250.00	"I have heard so much about your wonderful son from Kelvin, they actually look a little alike! All my thoughts are with Hayden. kia kaha, Giarna"

Dermot Murphy	$50.00	*

Aimee Kalogera	$50.00	*

Peter and Tricia Weinbaum	$100.00	*

Ben Harris	$25.00	*

Andrew Scott	$100.00	*

Pamela Feldstein	$200.00	*

David and Roisin O'Farrell	$222.00	*

Jason and Jackie Ourman	$250.00	*

URSULA DEARE	$50.00	*

Melanie & Simon Harding	$100.00	*

Paul and Fiona Scott	$100.00	"Best wishes guys Keep it up ."

bal bagary	$100.00	*

Anonymous	$15.00	*

Michael Halford	$100.00	*

Louise Cowen	$250.00	*

Dale and Wendy Meder	$50.00	*

Pat Curtin	$25.00	"Go Dean!!! Glad to do my small part in making this trip a success for Brendan and Kristin and their family. God Bless You All. Mom"

Lr Klink	Hidden	*

Rita Podmore	$50.00	*

Anonymous	$408.00	""Happy Wheeling" this weekend. Lots of love Willie and Adrienne Lynch, and Del and Ben Hart"

Marlene Fleming	$100.00	"My love to you all Brendon and Kirsten - Hayden and Charlotte "

Luke Shattuck	$100.00	*

Stewart Fleming	$100.00	*

Jacintha Sayed	$50.00	*

Meleah Butruille	$200.00	*

David Zuklie	$500.00	*

Cara Curphey	$100.00	*

Del Hart	$204.00	*

Misty Bailey	$100.00	*

Diana & Phil Veal	$250.00	*

Brendon Lynch	$377.00	"Proceeds from the raffle we held at the NF Endurance booth at the STP finish line."

Microsoft Matching Gift Program	$100.00	*

Microsoft Matching Gift Program	$100.00	*

Microsoft Matching Gift Program	$100.00	*

Microsoft Matching Gift Program	$250.00	*

Microsoft Matching Gift Program	$50.00	*

Microsoft Matching Gift Program	$100.00	*

Bank of America Foundation, Inc.	$125.00	*

Garth Dawson	$50.00	"Well done you crazy cats."

Paul and Elaine Pennington	$250.00	*

Misty Bailey	$100.00	*

Rishi Nangalia	$100.00	*

The Baxter Int'l Fdt Matching Gift Program	$50.00	*

Erin Wegener	$50.00	*

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Fundraising has ended.

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