Thankyou for taking the time to visit our website.
This year Paul and Sarah will be running the San Francisco Half Marathon on 7/25/10 to raise money and awareness for the Childrens Tumor Foundation which devotes itself to finding a cure for Neurofibromatosis (NF).
From our previous fundraisers, many of you are aware of our son Cameron, who is afflicted with Neurofibromatosis-1(NF1). Cameron struggles with normal daily life, such as eating and sleeping, which we all take for granted. We live for the day that he doesn't have to deal with pain, endless fatigue and an ongoing fear of NF progression and all of its effects.
Last year, Cameron reluctantly had a gastric feeding tube placed to aid his nutrition and growth. Although the nightly management of his feedings are mentally and physically draining, we are very thankful that this supplemental nutrition has helped Cameron gain ~15lbs and a couple of inches in height. Cameron finds it especially gruelling to be attached to a tube each night. He is also on an experimental chemotherapeutic drug and endures frequent blood and other tests. His pain tolerance is already so low and frequent needle sticks are especially hard on him. We are hopeful, that with your help we will be able to find a drug that will help him and thousands of other children and adults. Remember, "the rising tide raises all ships"... A cure for Neurofibromatosis will help all genetic, cancer and neurologic disorders.
Cameron's younger sister, Samantha is supportive and kind and suffers heartache in her own way. Paul, his dad, as a doctor can ironically help many, but feels impotent to help his own son. Sarah, his mother is in constant anguish. Since we began these fundraisers in 2006, with your help, we have raised over $75,000 for the Chilren's Tumor Foundation. We understand that the current economic times do not nurture fundraising and we are appreciative of anything you have to offer, even if it is just forwarding our message to spread the word.
You can donate directly below through this website or make your tax-deductible check payable to "The Children's Tumor Foundation" and include on the comments line our NF team #SF-2953-10 and mail to:
The Children's Tumor Foundation 95 Pine Street, 16th floor, NY,NY 10269-0741.
You can also learn more at www.ctf.org,or by clicking on the video link below . If you want to run/walk at the event for the Childrens Tumor Foundation, please contact Trish Hardy at thardy@ctf.org , #1-800-323-7938 ext 251 .
WE CAN'T RUN FROM THIS DISORDER BUT WE CAN RUN FOR IT.
Thank you all,
Paul, Sarah, Samantha and Cameron Fisch |