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| Megan Runs for NF |
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Hello and welcome to my donation page!
I am again teaming up with the Children's Tumor Foundation to run for neurofibromatosis research. My friend Sarah and I plan to run the Seattle Rock'n'Roll Half Marathon on June 27, 2009, then we will run the Portland Marathon on October 4th 2009. I am running because I love to run, but also for a cause I care about--to find a cure for Neurofibromatosis.
So, what is NF, you may ask? NF is the name given to a set of genetic disorders. There are three disticnt types--NF1, NF2, and Schwannamatosis . I have NF1, which causes, among other things, birthmarks (called café-au-lait spots) and tumors that grow on nerves anywhere on the body. It may also lead to disfigurement, blindness, deafness, brain and spinal tumors, bone abnormalities, and learning disabilities.
NF1 occurs 1 in every 3,000 births. The disease affects both sexes and all races and ethnic groups equally, and is more prevalent than Cystic Fibrosis, Muscular Dystrophy, and Huntington's Disease combined.
I have many birthmarks and more than 30 neurofibroma tumors on my body most of which are underneath the skin over nearly every part of my body. All are presently benign. The most visible manifestations for me are the large café-au-lait on my neck and the plexiform neurofibroma on the right side of my face and neck. I have had three surgeries to remove those visible tumors.
Because of this sensitive location, there is a great risk involving facial nerve that could leave the right side of my face paralyzed. The tumor has also grown around my right ear canal and blocks hearing and causes some pain in that ear.
There is no cure for NF, no way to predict where and when tumors will grow nor is there any treatment to prevent or stop tumor growth. This is why research is very important, and why your donation can help! My story is only one of many thousands. Together we can help find an end to this disease.
Donating through this site is simple, fast and totally secure. It is also the most efficient way to make a contribution to my fundraising efforts. However, I am more than willing to mail you donation forms, just email me your address to deacmegmeg(at)gmail(dot)com. Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!
Please feel free to visit the Children's Tumor Foundation website for more info on NF and the NF Endurance Team to read about our other races, fabulous people, and where your money goes. |
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Total Donations: $725.00
Goal: $1,000
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Below is a video from the Children’s
Tumor Foundation that demonstrates how your support benefits nearly
2 million people worldwide that are affected by Neurofibromatosis. I
hope you’ll please take a few minutes to watch the video and perhaps
be as motivated as we are to support The Children’s Tumor
Foundation.
Adobe Flash Player is required to view
video.
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