NF Endurance | It's In You, It's Possible!
Haven's Heroes Fundraising Page
Help support the cause and register for 2011 NF Endurance Team!.
Running Hard, So She Don't Have To!!!!
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Goal: $2,000

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Who is Haven? --------------------------------------------------------------------------------

She's all the way on the left in the picture.

Haven is a wonderful girl who was diagnosed with NF1 as an infant. The initial diagnosis was a crushing blow. We were terrified since we had no idea what this disease was, what it would do, and how it would affect our daughter.

Since then, we've watched her grow into a beautiful girl. But, we've also had to watch as her tumors grew with her. She has several tumors on her torso and some in her arms. However, it's the brain tumors that worry us the most. Though right now they only cause issues with balance, coordination, and muscle tone, they may grow to impact both her sight and hearing.

Who am I? --------------------------------------------------------------------------------

My name is Douglas Chace. I'm a soldier, father, and runner (I'm much better at the first two).

I'm running the Rock and Roll San Jose 1/2 Marathon to raise money for the Children's Tumor Foundation and my daughter, Haven.

I don't do "sitting and waiting" well, so this is my effort to help find a cure for my wonderful little girl. The race is the day before her birthday this year (10/3), so I thought this was pretty appropriate.

Who are we? --------------------------------------------------------------------------------

We are a group of people that simply love Haven and want her to have as long and healthy of a life as possible. We are dedicated to doing whatever we can to raise awareness and raise money to help Haven and other wonderful people just like her. If simply abusing our bodies and our egos by undergoing the ridiculousness of running long distances can help us meet our goal of a cure, then by golly – that’s what we’ll do.

What is the Children's Tumor Foundation and NF? ------------------------------------------------------------------

The Children's Tumor Foundation is a 501(c)(3) non-profit charitable organization. The mission of the CTF is to fund NF research in an effort to enable treatments and a cure.

Neurofibromatosis (NF) is a progressive and debilitating genetic disorder that causes tumors to grow along the nerves and nerve endings, randomly throughout the body. Additionally, NF can cause brain tumors, blindness, deafness, bone abnormalities, learning disabilities, and more. NF occurs in more than one in 3,000 births and is more common than Cystic Fibrosis, hereditary Muscular Dystrophy, and Huntington’s Disease combined. Currently, there are no effective treatments and

there is NO CURE for NF.

Below is a video from the Children’s Tumor Foundation that demonstrates how your support benefits nearly 2 million people worldwide that are affected by Neurofibromatosis. I hope you’ll please take a few minutes to watch the video and perhaps be as motivated as we are to support The Children’s Tumor Foundation.

CTF Video Link

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