NF



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Dawn Lowell's Fundraising Page
Racing for Research.....
Dawn and Ava at Lake Tahoe
Welcome to our page! This page is dedicated to our beautiful daughter Ava Ocean. Ava has Neurofibromatosis or NF1. NF1 is a genetic disorder known for causing tumors throughout the nervous system. At the age of 6 months it was discovered Ava has a neurofibroma (tumor) on the C1 & C2 nerves in her spine. If this tumor grows it will put too much pressure on the nerves in her spine and she will lose motor functions. There is no treament and no cure for Ava. She will have to endure MRI's every 6 months, NF clinics and countless doctor appointments. We have to do something to help my daughter before it is too late. Joining the NF Endurance Team with the Children's Tumor Foundation to raise money for a cure is the path to help her and all of the other families effected by this condition. Ava has NF1 due to a change in her DNA structure which only happens in about 1 out of 3,500 births.

Ava is now 18 months old and continues to thrive despite her tumor. She is truly a miracle. Last year was a rollercoaster ride for our family but thankfully Ava's 3 month MRI's have been reduced to every 6 months. Tumor shows stable. Ava has touched and changed our family's lives in so many ways. We have changed our diet, sought other ways outside of doctors to help Ava and just continue to strive to be as healthy as can be to help Ava fight this. So many special people have come into our lives and really have touched us and helped us in so many ways it is really hard to put into words. My husband even starting running and is completing his first half marathon which is something he said he could never do. Our niece also joined the Endurance Team and completed her first half marathon with me this past January in Carlsbad, CA. Ava has been a blessing in so many ways.

Reef cheerleading at Carlsbad

As for me, I have decided to finally take on the challenge of completing my first FULL marathon, yes that is 26.2 miles on June 6th in the San Diego Rock N Roll Marathon. I decided to take on this challenge in hopes it would mean more donations this year! More money, more miles I will run!!! My goal is to expand public awareness of this condition and increase understanding of the challenges facing persons with NF. My hope is that a cure is found before Ava may have to deal with the many challenges NF can bring on at any time. Please take a moment and view the video below.

If you would prefer to donate by check, please make checks payable to: Children's Tumor Foundation and mail to:

Childrens Tumor Foundation
95 Pine Street
New York, NY 10269-0741

Please include this ID# on check Dawn Lowell SD-5013-10

THANK YOU FOR YOUR SUPPORT!

Dawn

. : : Make a Contribution : : .

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Fundraising has ended.

Total Donations: $9,650.00
Goal: $2,500

$0 386% $2,500
Goal

Contributor Amount Comment
louis and anita lowell $25.00
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Wendy Haydu $25.00 "Dawn, We're so sorry to hear about Ava. I'm sure this has been a very stressful thing for you and your family to go through. I wish you the best of luck with the marathon. Kindest regards, Wendy, Steve and Taryn Haydu"
art mallo $50.00
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Sean Ramsey $25.00
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Albert Cropanese $50.00 "Dawn, You keep running just like I used to. Best of luck. I know you will be able to make it. Dad"
VICKI BOURN $50.00 "Best of luck to your family. Vicki Bourn Lyon Real Estate"
bryan paulson $100.00
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Robert Miller $100.00
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Barry & Lynda Keller Community Fund II $5,000.00
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Melisa Callison $50.00 "Good luck my friend. I know you are going to rock that 26.2. "
Anonymous $25.00 "I dream of blue and green glitter raining down on dear Ava. "
Kiley Mason $25.00
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Steve Claro $50.00
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Anonymous $25.00 "We are rooting for you Dawn, and praying for Ava. "
John McVay $25.00
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Lucy Peters $100.00 " Lluove and prayers for Ava. Best of luck with the run."
Jeff & Jennifer Goodman Hidden
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Terri Sears $25.00 "Keep on Keeping on! Our thoughts and prayers are with Ava and your family. Love Terri, Brian, Ethan, Eloisa and Adeline"
Iris Hernandez $100.00 "Dawn Good Luck on your marathon in June 1 I have Ava and the rest of the children affected by this disease in my prayers, hoping that soon there will ba a cure."
Ulla N Cowger $25.00 "Best of luck with the fundraiser and with the run; we put it on our calendar so we will think of you on the big day. Ulla"
John Callison $25.00
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Sarah Phillips $25.00 "Go Dawn! Have a great race! Ava is surrounded by so much love, it's awesome. Best of luck, xo, Craig, Sarah, Maren and Griffin Phillips"
Lynn Works $25.00
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Marilyn J Ginter $50.00 "Hi Dawn, It was Great seeing the picture of You & Ava, and also Reef cheering for you! Ava is so Beautiful & Reef is getting so big!! I was so sorry to hear about Ava's disease. Good Luck with your run. Take Care ~ God Bless ~ All of you are in my Prayers.. ~ Marilyn ~"
Jason Hernandez $50.00
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Jeffrey Cervantez $50.00
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The Regan Family $100.00 "Good luck Dawn! We will be think of you! Hugs and kisses from across the miles :)"
Alia Ball $50.00 "Dawn you are amazing for doing this!! Ava is so special and deserves so many people fighting for her and supporting her like your family is doing! We are routing for you all the way! We know you can do it just thinking of that beautiful little girl!! Love Alia, Marc, Brody, and Emyrson Ball"
Esther Nales $100.00
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Garth Jensen $50.00 "My prayers are with you."
Steve Hillier $50.00 "Blessings & do great"
Cindy Chapman $50.00
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Regina Bryant Hidden
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David Otto $50.00
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Anonymous Hidden
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Kevin Costa $100.00
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Adreanna Elting $100.00 "Good Luck Dawn... Our prayers are with you!"
michael naki $100.00
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Linn Sweeney $25.00 "Love to Dawn, Ava, Drew, and Reef. Live long and healthy. You have worked hard for this now enjoy the rewards that are soon to come. "
andrew lowell $500.00 "Run, Endure, Survive, For Ava"
Tom and Gwen Conway $100.00
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Monique Lacey $25.00
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Roger Sitcler $25.00
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Bruce Duane $50.00
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Below is a video from the Children’s Tumor Foundation that demonstrates how your support benefits nearly 2 million people worldwide that are affected by Neurofibromatosis. I hope you’ll please take a few minutes to watch the video and perhaps be as motivated as we are to support The Children’s Tumor Foundation.

CTF Video Link

Adobe Flash Player is required to view video.

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