Announcing our 2nd annual Run to benefit the Children’s Tumor Foundation!
Last summer we raised over $12,000 for the Children’s Tumor Foundation, a wonderful group that is dedicated to improving the health and well-being of individuals and families affected by neurofibromatosis. This year we aim to do the same!
Please sponsor me when I run not only the 20K New Haven Road Race on Labor Day,
but this year also the ING Hartford Marathon on October 9th! This is one of the NF Endurance Team's Signature Events.
My daughter Jane is 3 years old. She was born with NF, a condition that causes nerve tumors. She has tumors on her face, jaw, and neck (trigeminal plexiform neurofibromas) and behind both eyes (optic gliomas). This year Jane started an experimental medication (interferon) to help slow the growth of her tumors, as the only other available treatment is radical surgery.
By donating to the Children’s Tumor Foundation you can help fund the development of new therapies for NF.
To learn more about NF at The Children's Tumor Foundation web site
CLICK HERE.
And to learn more about the Mighty NF Endurance Team and where we are funding research please read "Team Fundraising Dollars at Work"
CLICK HERE.
Thank you!
Kristy Rath & daughter Jane
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