In 2004, at the age of 1, Connor was diagnosed with Neurofibromatosis (NF1).
NF can cause benign tumors to grow on the nerves anywhere on or in the body. NF1 can also affect other tissues, including the bones, skin, blood vessels, and eyes. In addtion, nearly 50% of all people with NF1 have learning disabilities.
Connor currently has a benign plexiform tumor by the left side of his upper spine, that causes pain, and has NF related scoliosis. He participated in a trial study out at the National Institute of Health (NIH) this last year. The goal was to try and shrink his tumor. Although there was an 8% decrease, it wasn't enough to continue in the study.
Currently there are not any treatments for NF and there isn't a cure. Connor's future is in the hands of this disease. It will decide if he will be able to see, hear and run like other children. It is unpredictable.
Please join us this year in our fight to find a cure. Please consider joining our team by participating in an event and helping us raise money, or by making a donation to the Children's Tumor Foundation.
To learn more about NF at The Children's Tumor Foundation web site
To learn more about the Mighty NF Endurance Team and where we are funding research visit our endurance team page and click on the menu item on the left hand side "Team Fundraising Dollars at Work"
We can't fight this disease alone!
Meet Our Team
Team Connor has decided to put a stop to NF, to fight for Connor's future, a future that will be decided by Connor and NOT NF.
Kari and Scott Harrison - Connor's Parents
Lynne Miller - Kari's Sister
Shannon Brennan- Kari's Sister
John Brennan - Kari's Dad
Kimberly Marshall - Scott's Sister
Hilary Moorlach - A friend of Connor's Family. Also fundraising in memory of her cousin Carley who had NF.
Jim and Veronica Browning - Friends of Connor's Family
Liz Promer- College friend of Kari
Lisa Thorsell -High School Friend of Kari
Kelly Dougherty - Friend of Connor's Family
Here is a list of our 2009 Events.
April 25- Get in Gear
May 30 - Dam to Dam, (Des Moines, IA)
May 31 - MPLS Marathon/Half
June 6- Celebration of Children 5K
June 20 - Grandma's Marathon and Half Marathon
July 11 - Lifetime Fitness Triathlon
August 16 - YWCA Womens Triathlon
October 4 - TC Marathon and 10 Mile
Thank you for supporting team Connor!
To check up on Connor's progress, click on this link:
Click Here for a recent news article of our success!