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Victor Sowards's Fundraising Page
Racing for Research
Our daughter Madison was diagnosed with Neurofibromatosis type 1, when she was 3 months old. We had never heard of NF before she was diagnosed, even though it is one of the most common genetic disorders there is. Occurring in about 1 in every 4000 births. More then Cystic Fibrosis and Muscular Dystrophy combined. The hallmark of NF 1 is tumors that grow on the nerves anywhere on or in the body. NF1 may lead to blindness, deafness, brain and spinal tumors, severe disfigurements, bone abnormalities, developmental delays and learning disabilities. Madison is the light of our life. She is a joy and an inspiration to be around, we feel so blessed by her everyday. She is our youngest of four children, the others being NF free. NF is hereditary, though about 50% of new cases are from gene mutation. Which is how Madison has NF. Madison had congenital Pseudarthrosis, of the left tibia- which is a complication of NF. She wore a brace from 3 months old, trying to protect her thinning tibia from breaking. It broke when she was 8 months old, and did not attempt to heal. So her leg was amputated just below the knee, right after her first birthday. She has had three surgeries since to revise the leg, and will continue to need them until she stops growing. She has scoliosis, and a plexiform tumor across her back that are monitored. She also has yearly MRI'S of the back and brain to makse sure things stay stable there. It was very hard in the beginning, mainly for us, she is a real trooper. She is now five years old, and is just doing great- I know one day, she to will be running right along side of her Daddy, to raise money in hopes of finding a cure. Thank you so much for your support, as we all work hard for NF awareness and Race For a Cure!! There is no amount to small (or to large) Every dollar gets us closer to finding a cure!!! Victor Sowards
Total Donations Collected:$75.00
Goal: $2,000
$0 4% $2,000
Goal

Below is a video from the Children’s Tumor Foundation that demonstrates how your support benefits nearly 2 million people worldwide that are affected by Neurofibromatosis. I hope you’ll please take a few minutes to watch the video and perhaps be as motivated as we are to support The Children’s Tumor Foundation.

CTF Video Link

Adobe Flash Player is required to view video.

Contributor Amount Comment
Paul Abbott $25.00 "Hi Madison you are a real sweatheart! Hi Victor I run for the NF team too, as my son Josiah has NF1."
Victor Sowards $25.00
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Anonymous $25.00
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