NF



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Jill and Rodney Markland's Racing Across America Team
Riding for NF research
Jesse beginning a surgery to help him with his pain

View Jesse's Welcome page here with a click

The Race Across America (RAAM) will begin on June 18. I will be part of a four man relay team and we, along with our amazing crew, will race 3000 miles from Oceanside, California to Anapolis, Maryland. On August 3, a team of us representing NF Extreme Endurance will begin a climb up Mt. Rainier in Seattle. Both journeys will be extraordinary and epic - just as my son Jesse's fight against NF.

Bottom line - I am doing this to save my son's life.

Jesse Markland just turned 6 years old and has Neurofibromatosis (NF1). There is no treatment and no cure for NF. Jesse's NF manifestations are: he has multiple café-au-latte spots (coffee colored birth marks), about 20 – 30 dermal neurofibromas (small tumors), 1 plexiform neurofibroma (more complex tumor), an optic glioma (brain tumor behind his left eye), his legs often hurt for an unknown reason, nerve pain across his shoulder blades that causes him to scratch and dig at his skin until he bleeds and scars, and has lived with chronic/severe nerve pain at the back of his head. Even though one of his NF symptoms is a brain tumor, Jesse’s worst NF Manifestation is the head pain. Raging cries of pain do not begin to describe what he has gone through. He has had to take liquid pain medication 3 times per day, two additional pain pills at night, and has had 4 surgeries to help him with the pain. He is only six years old. His latest surgery has helped incredibly with his pain with a 90% improvement and the great milestone of Jesse now being pain medication free. Not long ago, someone told me that Jesse must have walked into a nest of mosquitos, he had bites all over him. My reply, “no, those are tumors”. They are bulging out of his body... and those are just the ones that we can see.

NF is a progressive disorder so he could continue to get worse every day. We are in a race to get ahead of this horrible disorder before he hits puberty. NF is very hormone responsive so when the hormones of puberty kick in, there is no telling how this will effect him. There is nothing we will not do and no place that we will not go to continue to raise awareness for NF and to raise funds for the research to find a treatment and a cure.

. : : Make a Contribution : : .

Total Donations: $11,625.00
Goal: $100,000

$0 12% $100,000
Goal

Contributor Amount Comment
Wende Penny $25.00 "Love you all!"
cindy cochran $25.00 "In honor of Jesse - may we get closer every day to finding a cure. This is just a bitter sweet reminder of how lucky my Kate is with her NF1 symptoms. Wishing the best for you all!"
Paul Zaffiro $75.00 "For Jesse -- and your tireless dedication and inspirational leadership."
Jim Peters / Xtreme Precision $200.00
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Marilyn Morrow $100.00
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Fraternal Order of Police $1,511.00
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Lawrence Motorsports $100.00
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Anonymous $100.00
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4 Fun 4 Wheelers $38.50
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Lawrenceburg Police Department $200.00
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Brent Robinson $75.00
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Tawnya Tapia-Moretz $25.00
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Heidi Johnson $25.00
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Jessica Jonquet $25.00
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Christina Johnson $25.00
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Carrie Roecks $25.00 "We have a family member who suffers from NF, so we know the excruciating pain your little guy has dealt with. Bless you for raising money for research and to find a cure! "
Sue Hart $25.00 "Prayers for all of you! "
Sherry Hennies $25.00 " We are praying for all of you. You are such a wonderful family and we love you guys."
Mary Brown $50.00 "We know how you feel. My granddaughter was also born with NF and at 4 months starting have surgeries to remove tumors. She is now 18 and has had 17 surgeries for one thing or another. She wears hearing aids because of the tumors behind her ears and at the age of 5 had to have her right leg amputated below the ankle because of a shattered bone in her leg from NF. This summer she is having more of her leg removed so that she can wear a prosthesis more comfortable. She has been an inspiration to our family. What a trooper!!!"
Kelli Spurlock $100.00 "Thank you for being such an inspiration to me and many others. Good luck out there! Stay strong! "
Kay & Judy Hubbard $25.00
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Kelly & Donna Keys $30.00
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Kristin Swayne $50.00 "Wishing you perfect weather and lots of crazy energy for this bike ride. I'm so impressed - God bless!!"
Ben Monterotti $50.00 "Best of luck with the race. Thanks for all you do!"
Ken Losekamp $100.00 "Ride Safe, Ride Strong, and come home safe brother!"
Whitney Slayback $25.00
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Anonymous $25.00
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Bryan Johnson $25.00
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United Community Bank $755.50
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Coleen Simpson $50.00
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George & Mryna Wissing $100.00
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George & Mryna Wissing $300.00 "Rodney this is a little different than the 100 mile rides you, your dad and I went on when you were a kid. You have definitely graduated to the BIG time. Be SAFE! Love George & Mryna"
Donna Wehmeyer $20.00
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Kappa Kappa Kappa Inc. $200.00
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Margaret Blanton $50.00
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Natalie Moroney $100.00
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Justin Campbell $100.00
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Michael Friedman Hidden "Go Rodney! Best of luck on the journey."
Marjean Hrezo $100.00 "You and Jill are in our thoughts and prayers. Stay safe out there!!"
Jacob Bunner $25.00 "Stay Strong!"
Carrie Black $25.00
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Dave Caracci $100.00 "Rodney and Jill - wishing you a safe and successful race...you are both so inspirational !!! "
Hoosier CrossFit $50.00 "Great Challenge for a Great Cause! We will be looking for you when you pass through Bloomington."
KEN & KAREN REINHARDT $100.00 "HUGS TO ALL OF YOU!!"
Patrick McCool $100.00
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Anonymous $100.00
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Jean Foutch $25.00 "The finish line is so close....keep on biking! "
Karalee Tucker $50.00 "Humbled and inspired by your cross country journey, as well as your daily struggle, to help your son and ultimately so many others that suffer from NF!"
Jean Foutch $20.00
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Davdi & Pat Rolfes $130.00
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Amelia Fuller $30.00
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Susan Hart $40.00
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Mary & Gene McCann $100.00
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911 Gives Hope $2,000.00
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City of Lawrenceburg $1,000.00
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Chris, Troy & Logan Dittmer $100.00
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Samantha Sakemiller $100.00 " I learned about Jesse from Shannon Marcum. I think it's incredible that you are raising money and awareness of the disease. Even though the race is over I wanted to make sure I supported all the hard work and endurance. "
Kristin Guehlstorf $2,500.00 "Thank you for all you do in support of CTF in the the fight against NF! Our daughter also has NF. We wish you and your family the best in 2012. We pray that your son may live pain-free and that we have a cure for all the NF kids asap! We are so inpsired by the RAAM goals and this should put you over the top of that overall goal of $50,000! ~The Guehlstorfs"
Mark and Paula Bruner $50.00
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Below is a video from the Children’s Tumor Foundation that demonstrates how your support benefits nearly 2 million people worldwide that are affected by Neurofibromatosis. I hope you’ll please take a few minutes to watch the video and perhaps be as motivated as we are to support The Children’s Tumor Foundation.

CTF Video Link

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