Neurofibromatosis (NF) is a debilitating genetic disorder that causes tumors to grow randomly throughout the body on the nerve sheaths. NF occurs in more than one in 3,000 births – more than Cystic Fibrosis, Duchenne Muscular Dystrophy, and Huntington’s Disease combined.
Fortunately, there now is a way you can help alleviate the suffering…simply by participating in a Myrtle Beach event to help raise money for NF research and services. Here’s how it works: Once you have registered on our website to participate in the Myrtle Beach Marathon, Half Marathon, 5K, or Bike Event you can then create a personal fundraising web page. Then you ask for donations from family, friends, coworkers, neighbors, etc. Don’t worry! It’s not as difficult as you think. In fact, we’ll give you the tools you’ll need to raise the money.
Through this site, you have the option of fundraising individually or starting or joining a team. The NF Endurance Team is committed to raising funds and awareness so one day there will be a cure for NF! Help us get there. Mile by mile, step by step, you’ll be enabling the life-saving mission on the Children’s Tumor Foundation, while meeting new friends and experiencing something you’ll never forget. Please visit our website at www.ctf.org/endurance or email nfendurancectf.org for further details.
Now that you have registered with our team, be sure to visit the Myrtle Beach Marathon website and register for your event.
Below is a video from the Children’s
Tumor Foundation that demonstrates how your support benefits nearly
2 million people worldwide that are affected by Neurofibromatosis. I
hope you’ll please take a few minutes to watch the video and perhaps
be as motivated as we are to support The Children’s Tumor
Foundation.
Adobe Flash Player is required to view
video.
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