en•dur•ance: the ability or strength to continue or last, esp. despite fatigue, stress, or other adverse conditions; stamina.
Each day our NF Heroes endure the challenges of neurofibromatosis (NF), a debilitating progressive disorder that can cause tumors to grow anywhere in the body. NF affects 1 in 3,000 births – more than cystic fibrosis, Duchenne muscular dystrophy and Hungtington’s disease combined.
There is a way you can help make the challenge of living with NF a little bit easier. In support of the Children's Tumor Foundation, NF Endurance (NFE) offers the opportunity for individuals to participate in team endurance sports to raise money for research, promote awareness, and provide a network of caring support for those suffering with neurofibromatosis and their families.
You may sign up to fundraise for a Long Island Marathon event at www.nfendurance.org/longisland or make a donation on this page.
NFE is committed to raising funds and awareness so that one day our NF Heroes will not have to endure more challenges brought by NF. For more information, please visit NFEndurance.org or e-mail nfendurance@ctf.org.
NF Endurance. It’s in you. It’s possible.
Below is a video from the Children’s
Tumor Foundation that demonstrates how your support benefits nearly
2 million people worldwide that are affected by Neurofibromatosis. I
hope you’ll please take a few minutes to watch the video and perhaps
be as motivated as we are to support The Children’s Tumor
Foundation.
Adobe Flash Player is required to view
video.
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