|
| Anneliese's Road Racers for Research Fundraising Page |
|
|
| We ruNFor Anneliese! This year I joined the NF Endurance Team specifically; Anneliese’s Road Racers for Research (AR3). Anneliese is the daughter of close family, Don and Eliz Hahn. Anneliese is a smart, beautiful, and caring 5 year old girl who happens to have NF1. NF is the abbreviated form of Neurofibromatosis, a neurological disorder that affects about 1:3000 people. Anneliese has café-au-lait spots throughout her body and several small neurofibromas on her head. We have been lucky so far. Anneliese’s recent MRI came back clear and she has not been afflicted by the many symptoms associated with the disorder. I say that we have been lucky so far but we cannot be sure what her future has in store. NF is unpredictable. Currently there is no cure for NF. There are many clinical trials taking place and progress is being made. The research to solve the NF puzzle is ongoing and needs funding. That is where we come in. We can help the skilled researchers continue to do their jobs by providing them with the funding that is required to continue with their work. AR3 is back in action this spring. May is NF awareness month! On May 8th I will be joining Don for the 500 Festival 5k that takes place just prior to the Indianapolis Minimarathon. We hope to raise $1000 for research with your help. |
|
Below is a video from the Children’s
Tumor Foundation that demonstrates how your support benefits nearly
2 million people worldwide that are affected by Neurofibromatosis. I
hope you’ll please take a few minutes to watch the video and perhaps
be as motivated as we are to support The Children’s Tumor
Foundation.
Adobe Flash Player is required to view
video.
 |
|
|
|
 |
| - Anneliese |
|
|
Sorry.
Fundraising has ended.
|
|
Total Donations: $175.00
|
|
|
|
|
|
|
|
|
|
