Neurofibromatosis (NF) is a debilitating genetic disorder that causes tumors to grow randomly throughout the body on the nerve sheaths. NF occurs in more than one in 3,000 births – more than Cystic Fibrosis, Duchenne Muscular Dystrophy, and Huntington’s Disease combined.
Fortunately, there now is a way you can help alleviate the suffering…simply by riding in a bike event to help raise money for NF research and services. Here’s how it works: Once you have registered for the 2009 Horrible 100 bike event with our team a personal fundraising webpage is created for you. You may then ask for donations from family, friends, coworkers, neighbors, etc.
Through this site, you have the option of fundraising individually or starting or joining a team. The NF Endurance Team is committed to raising funds and awareness so one day there will be a cure for NF! Help us get there. Mile by mile you’ll be enabling the life-saving mission of the Children’s Tumor Foundation, while meeting new friends and experiencing something you’ll never forget. Please visit our website at www.ctf.org/endurance or email nfendurance@ctf.org for further details.
Note: Please be sure to visit the Horrible 100 website and register for the event.
Below is a video from the Children’s
Tumor Foundation that demonstrates how your support benefits nearly
2 million people worldwide that are affected by Neurofibromatosis. I
hope you’ll please take a few minutes to watch the video and perhaps
be as motivated as we are to support The Children’s Tumor
Foundation.
Adobe Flash Player is required to view
video.
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