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Susan's 5k Fundraising for NF

Walking With a Purpose!

Hello! Thank you for visiting my NF Fundraising Page!

As many of you know, late last summer I lost my left leg below the knee. It’s been a crazy year, but my recovery is going really well and life is starting to return to something resembling normal.

What many of you may not know is that I lost my leg due to a condition known as Pseudoarthrosis of the Tibia. This is a genetic condition and complication of NF1 where the tibia (and sometimes the spine) will break and is unable to heal- even after many surgeries and treatments over the course of a child and young adult’s life. There is no cure. Neurofibromatosis affects approximately 100,000 children and adults in the US. NF causes tumors to grow just about anywhere in the body and can result in physical deformities, brain and spine tumors, learning disabilities, chronic pain, blindness, and other serious medical conditions that make living with NF extremely challenging for the children affected by it.

On October 9th I will be attempting to “walk” a 5k in the ING Marathon in Hartford CT , as a member of the NF Endurance Team. The NF Endurance Team works year round participating in events to raise money and awareness for NF research.

Although this event will be personally challenging – it is not about me. In fact, there is one little girl in particular who has inspired me to commit myself to the CTF’s Endurance Team. Her name is Shaylyn, she lives in West Virginia with her family. She’s just 6 years old. Shaylyn also has NF1 and Psuedoarthrosis of the Tibia. Recently she underwent a Syme's Amputation and is learning to live the rest of her life with a prosthetic. Her courage and determination amaze and humble me. I will be walking for her and the thousands of other children whose lives are dramatically affected by NF.

Won’t you please make a donation to the CTF and support my efforts to raise the much-needed funds that will go towards research and better treatments for children like Shaylyn? It is my goal to raise $3,000 for the CTF. Please make a donation today to help me reach that goal. The event is just two months away!

Also, if you prefer, you can send a check to the Children's Tumor Foundation directly. Just make the check out to:

Children's Tumor Foundation

95 Pine Street, 16th Floor

New York,NY10269-0741

In the Memo part of your check please write: Susan Keegan CT-5680-10. The memo allows CTF to post the donation on my web page and goes towards keeping track of how close I am to reaching my goal.

I may have lost the battle to keep my leg, but with the CTF and NF Endurance Team, I’m out to win the war against NF – With your help we come another step closer!!!.

Total Donations Collected:$4,570.00

Goal: $3,000

152%

$3,000
Goal

Below is a video from the Children’s Tumor Foundation that demonstrates how your support benefits nearly 2 million people worldwide that are affected by Neurofibromatosis. I hope you’ll please take a few minutes to watch the video and perhaps be as motivated as we are to support The Children’s Tumor Foundation.

Adobe Flash Player is required to view video.

Contributor	Amount	Comment
Paula Michalski	$100.00	"God Bless You both! Love and Prayers coming your way! ~ Paula M."

Ayden Wagler	$50.00	"You are truely an inspiration to us all :)"

Christine Fitzgerald	$50.00	"You go girl! And keep on inspiring us along the way!"

Don & Yvette Keegan	$100.00	*

Kerry Boudreau	$100.00	*

Gary Jones	$100.00	*

Denise & Jim Washok	$100.00	*

Charles Reeves	$100.00	*

Anonymous	$10.00	*

Joe, Amanda, and Sam Valenzuela	$100.00	*

Collette Snoonian	$25.00	"You're amazing Susan!!"

Joanne and Roger Bouley	$100.00	*

David Kallery	$100.00	"Great luck Susan!! The Kallery's will be thinking of you! "

Katherine Mills	$25.00	"Good luck!"

Dixon Li	$100.00	*

Helen Le	$50.00	"With love and best wishes!"

peter devereaux	$25.00	*

Claudia Leblanc	$100.00	*

Kath MacLeod	$50.00	"Go get 'em, Susan!! xox Kath,Mike,Hannah and Max"

Jim Miller	$100.00	*

Sue Pigulski	$10.00	"Good luck Sue!! You're amazing!!!!"

marc civitarese	$25.00	*

Rita Audree Civitarese	$100.00	"Your strength, courage and wonderful sense of humor inspire us all....lot of love, Uncle Joe and TaTante"

Julie Stewart	$30.00	*

Bunny Hartmann	$10.00	"Thank you!"

Kevin Conklin	$25.00	*

Ernst Bovenkerk	$25.00	*

Susan Frendreis	$25.00	"God bless you in your endeavor to raise money for such a worthy cause. "

Donna Pasquale	$25.00	*

Lisa & Donny Masella	$25.00	"That's my girlfriend! so proud of you!"

Toni Katz	$50.00	"Sue... wishing you all the best...we know you can do it!"

Cindy Sauve	$25.00	"you will do awesome.. we are all so proud of you!! xoxo"

Brian McHugh	$100.00	"I hope you reach your goal. What a great thing you are doing."

Anne Marie Burns	$25.00	"Good Luck Sue!"

Trish Hampton	$100.00	"Good luck Susan "

Leann Goujon	$15.00	"You are and inspiration Sue"

Melisa Callison	$25.00	"God Bless you!!"

Kara LaFortune	$50.00	*

Nadine Brown	$50.00	*

richardeen au	Hidden	*

Julie Valliere	$25.00	*

Anna Zielinska	$100.00	*

Albert Legault	$25.00	"Best of luck and my love to you and your efforts. uncle al"

Jodi Leafer	$100.00	"You go girl!! You are truly an amazing inspiration to us all!"

Rick + Angela Gill	$100.00	*

MARLA INTOPPA	$20.00	*

Barbara LeBlanc	$25.00	*

Nancy Firicano	$100.00	"Good luck Sue! Love, Nancy and Michael"

Gina Kucker	$25.00	"Good luck on your 1st 5k Sue! You will love every kilometer!"

Laurie Raposo	$25.00	*

John Sullivan	$25.00	"Good luck on your first of many events!"

Linda Sbuttoni	$25.00	*

Debbie and Gary Finn	$50.00	*

Caren Morningstar	$10.00	"Sending you a vision of health and wellbeing..."

Dana Allen	$25.00	"Susan......You give so much hope to us parents that have kids with Pseudoarthrosis. Good luck to you! We are behind you in spirit every step of the way!"

Sheila Isbell	$25.00	*

Mary Beth O'Connell	$25.00	*

Don & Yvette Keegan	Hidden	*

Gina Macchi	$20.00	*

Stephanie Plante	$5.00	"good luck with the walk susan!"

Donald Ahearn	$100.00	*

Blair Budka	$50.00	*

Eleanor Vargas	$100.00	*

steve geary	$60.00	"Hope this helps Susan !"

Bonnie Kasmere	$25.00	*

Robin Claiborne	$25.00	"I am so proud of you! "

Michelle Sterner	$25.00	*

Mark Russell	$100.00	"You go girl !"

Wayne and Ruthann Dodge	$50.00	"You go girl! Don't forget to post pictures of the race. Much love and success. Auntie Ruthy and Uncle Wayne xoxo"

Lucy Karis	$50.00	"Awesome job. You already reached your goal! "

Andrea Lloyd	$25.00	"Susan, God Bless you in your efforts to conquer this incidious disease in what ever way you can! Good luck with your walk! People like you make the world a much better place, and give hope to others with this disease. All the while you have a beautiful smile on your face and tremendous courage in your heart. God Bless you ! Andrea"

Jeannine Colella	$50.00	*

Jacqueline Kempf	Hidden	*

Michael Asher	$25.00	*

Anonymous	Hidden	*

Robin Schweizer	$25.00	*

Charles Abizaid	$50.00	*

Patricia Russell	$50.00	*

terryann thompson	$25.00	"Sue you are a true inspiration to everyone you touch. Love you TA"

Annmarie Kennedy	$50.00	*

Next Step Orthotics & Prosthetics	$100.00	*

Howard Hazard	$25.00	*

Rosanne West	$25.00	*

joanne and norman brown	$30.00	"good luck susan my self and my granddaughter have been following your progress. little friend of zoe's conner walker is going to have his leg amputated also so when zoe does her junior great north run on saturday she will be thinking of him.hope you do well . joanne and zoe.xxx"

Edward Cassidy	$100.00	*

David Dage	$50.00	*

Gloria Kelley	$10.00	*

Donna Blouin	$25.00	*

Ciao's Pizza and Sub, Inc.	$20.00	*

David Ahearn	$50.00	*

Patrice Cunningham	$25.00	*

Krystal Louder	$25.00	*

Eastern Bank Charitable Foundation	$50.00	*

Green Mountain Coffee Roasters,Inc.	$50.00	*

Peter Doulamis	$30.00	*

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Fundraising has ended.

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