NF Endurance | It's In You, It's Possible!
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Anne Shigley is running ING Georgia 2010! Please donate!
Running for research to cure Neurofibromatosis!
My mom is awesome!!! <3

Who will get pied on May 2nd? The next race up is the Long Island 1/2 Marathon, with 31 people already signed up with the NF Endurance Team! Just to add some crazy little fun incentive to raise money for NF, I am up against my friend... and co-captain, Krissy, to see who can raise the most money, and the "losing" (fund-raised amount not race time clock) will get PIED IN THE FACE AFTER THE RACE, AND PICTURES WILL BE POSTED! HELP ME TO GET KRISSY PIED... DONATE NOW!!!! 100% of donations go to NF, not the pie! :-)

My name is Anne Shigley. I was diagnosed with Neurofibromatosis Type 2 at the age of 7. I had my first surgery at age 9, and then lost my residual hearing from NF2 in 2005, and in 2007 I got my Auditory Brainstem Implant... which is amazing and has changed my life! I am happy to be able to hear my parents say "I love you!" on the telephone, and lots more, even though I am now deaf. I am from Atlanta, but I am at school at Rochester Institute of Technology, in Rochester, NY.

About 1 in 3,000 are affected by NF1. About 1 in 25,000 are affected by NF2. (what I have.) About 1 in 40,000 are affected by Schwannamatosis.

NF is not the end of anything for me... it is more like an adventure. If it were not for NF I would have never had learned about the beauty of sign language, perhaps I would have had not run as much, and I certainly would have had never met all the awesome people that I have met because of NF.

In 2010, I plan to run the following races with the NF Endurance Team:

March 21 - ING Georgia Marathon - for Kate T., Kate S., Drew, and many others! - FINISHED the 26.2 mile run in 4:40! NFET had over 100 people at race and raised $51,816 for NF!! I raised over $2,000 of that myself, and my goal for the year is $10,000!
May 2 - Long Island 1/2 Marathon - for Krissy!
Summer- no finalized plans at this time, but where ever I am, I'll be running!
Fall- NYC Marathon, if I get an entry, or maybe Chicago.

A donation of one dollar per mile of Anne’s marathon would be $26.20. Ten dollars per mile run would be $262. Twenty dollars per mile would be $524.

With God's help, and yours, we will help solve the neurofibromatosis puzzle.

Thank you!

By the way, my long term goal with my dad is to raise 1 million dollars for NF!!!!

Please donate on my page to help find a cure for NF.

Total Donations Collected:$3,050.00
Goal: $10,000
$0 31% $10,000
Goal

Below is a video from the Children’s Tumor Foundation that demonstrates how your support benefits nearly 2 million people worldwide that are affected by Neurofibromatosis. I hope you’ll please take a few minutes to watch the video and perhaps be as motivated as we are to support The Children’s Tumor Foundation.

CTF Video Link

Adobe Flash Player is required to view video.

Contributor Amount Comment
Ken & Sally Shigley $262.00 "That's our girl! We're so proud of you!"
Maricel Rice $25.00 "Thank you for being a positive force in this fight. I also have NF2. I'm still fairly new to all this. I am 36 and was diagnosed almost 3 years ago. No surgery so far but I have lost almost all my hearing in 1 ear. "
Anonymous $26.20
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Barbara and John McArthur $50.00 "Go Anne! We're very proud of you! Aunt Barbara and Uncle John"
Mark Frank $25.00
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Rose Bennett $10.00 "Keep running!"
Steve Reason $25.00 "I love your spirit and determination. There should be more Anne Shigleys in this world!"
Stephen Wallin $25.00
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Carrie LaGrone $10.00 "Have a good race!!"
Wayne Grant $100.00 "You are an inspiration. Good luck with the marathon, though I have a feeling you won't need it."
Bobby Jones $50.00
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Joseph Watkins $50.00
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Richard Mitchell $50.00
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Jay Sadd $100.00
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Daniel Linebaugh $250.00 "Our thoughts and prayers are with you. Keep up the good work!"
Ronald Palagi $100.00
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tara rochford Hidden "Have a great race, Anne! "
Brian Lease $25.00
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Mark and Tracy Galloway $250.00 "You are an inspiration Anne! Keep onna runnin!"
Meryl Dilcher $26.20 "I am so proud of you, Anne......You have such a gift for inspiring others. Keep it up!!!"
Andy Cash $50.00
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Devon Atchison $25.00 "Woohoo! Having fund raised for Team in Training, I know what a challenge and reward this is for you! Congrats and You Go Girl!!! Devon"
andrew speaker $25.00 "Best of luck on your next race! That is fantastic."
Emily Gross $50.00 "Thanks Anne for all you are doing! "
Jack & Ellen Rosenberg $100.00
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Daniel Buba $50.00
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Jon Greer $50.00
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Dara Dandrea-Giannotti $10.00 "Thanks so much for doanting to our race in Philly and best of luck with yours...you are an inspiration....GO NF TEAM!!!!"
Jim Stewart $50.00 "After seeing the photo of you beautiful ladies, with such big, happy smiles - I could not not donate! Jim Stewart"
Dawn Holloway $50.00 "You ROCK Anne! God Bless you for fighting for the cure!"
Rachel Mindrup $25.00 "You keep running! I know they will find a cure for NF!"
RIT Faculty and RIT Students $53.24 "This is the collected total amount that I (Anne Shigley) received from faculty and students by talking to a bunch of people about explaining NF and the NF Endurance Team and CTF in a couple hours of one afternoon! I also distributed about 50 or so of the donation envelopes along with the link to here included with it. It felt very encouraging and many of them said things like that they are awed at me for doing this, and that they support me, that they will send in a donation, etc! "
Kathleen Szczepanek Hidden
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Vicki Franch $100.00
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Susan Patterson Robbins $25.00 "Go for it! I hope you reach your goal. I'm a Furman classmate of your Dad. Good luck! Susan Patterson Robbins"
Jane Shigley $26.20 "I don't know you but your last name sounds familiar! You must be a great athlete! What a wonderful cause. Best of luck and have fun!"
Patricia Spiecker $25.00
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Stephen Noble $26.20 ""I wanted to donate on your page, but decided to fill up your tank instead, and there wasn't room for the last 20 cents." - Steve, my BF, on the day of the ING Georgia Marathon. (his car was in the shop so he had mine for the weekend, to take me to and from the airport, and to go to curling.) <3 - Anne Shigley"
Jane Mullins $25.00
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Jessica Eggleston $10.00
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Anonymous Hidden
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Robert Titterington $25.00
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William Yust $10.00
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Nancy Hilmy $100.00
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Jon Forehand $100.00 "Keep up the good work!"
Rose Bennett $10.00 "Good for you!"
Kelly Sexton $40.00
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David Stevens $25.00 "Good Luck Anne!"
Sydney Long $5.00
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Ellen and David Hurst $50.00 "Go, Anne!"
Anne Shigley $100.00 "CURE NF!!!"
Rebecca S Black $25.00
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Ear Gear $100.00
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Marvin Cohen $25.00
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Karen Christie $25.00
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Yulia Valko $25.00 "Anne, I am amazed by you! "

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