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For Gwynie...
Chasing Down the Cure
Daddys Girl!
Thank you so much for stopping by!

This is my daughter Gwyneth (a.k.a. "Gwynie"). Gwyneth was diagnosed with type 1 Neurofibromatosis just a few months ago. As of now, my daughter is only two and a half.

As those of you know that are aware of this disease and its effects- she has an uphill battle ahead of her, for perhaps even the rest of her life. You see, Type 1 Neurofibromatosis causes not just developmental delays in a young child- but it causes nerves in the eyes, spine, and brain to tumorise. She can also develop visible tumors on her skin, bone abnormalities, and heart defects. Since usually these are tumors in such sensitive areas surgery is usually a non option. In which cases we then have to look at chemotherapy. It can cause a vast array of problems for Gwyn from the way she talks and walks, to her sight, to her hearing, to her growth, and to her life. She does already have tumorous "gliomas" on her optic nerves, a very sensitive area being on her optic nerves and close to her pituitary and adrenal glands. These are located in the control center of the brain. That is why we all have to watch her so carefully.

Make no mistake- this is a terribly tough disease, but my daughter is a trooper. From her first day getting her EEG tests with 3 hours sleep and fifty electrodes attached to her head- she didn't cry, she didn't whimper... She smiled at Steph and I and gave us a thumbs up that would melt a glacier. Her favorite words are Dah (Dad), Mah (Mom), Jessh (Josh, Uncle and Cousin), Grah-mah (Grandma), Pop (Grandpa), and Deh-Troit (Detroit Tigers)! She loves to take walks, pick flowers, catch bugs, read stories, have tea parties, watch Detroit Tigers baseball, My Friends Tigger and Pooh, Mickey Mouse Clubhouse, Imagination Movers, and most of all being both the joy and inspiration of I, and my wife Stephs lives.

Gwyneth is a gift that God blessed us with. And as strong as He has made her, He has charged us with her well being. And that is not a task we take lightly nor can undertake alone, and that is where you come in, our family, our friends.

We have a daunting task ahead- but so do over a 100,000 other kids just like her. Everyday, we are a step closer to a therapy that could stop this condition. But to do that, it takes doctors, research, and funding. You may not know my daughter- but she isn't the only one fighting this disease. Every person that contributes is another person standing beside her, and children like her, fighting this as well. Every little bit helps- and while this is a lofty goal that has been set- it is do-able, but with your help it won't be a goal- it will be a cure.

Please feel free to email me at philip.taylor@lfg.com if you have any comments or questions.

Thank-you!

. : : Make a Contribution : : .

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Fundraising has ended.

Total Donations: $3,796.00
Goal: $3,500

$0 108% $3,500
Goal

Contributor Amount Comment
Kate Moore $50.00 "There could not be a more proud Aunt (Uncle and Cousins too)! Gwyn is amazing and we love her more then she will ever understand!"
Anonymous $10.00 "Gwynie, you are in many thoughts and prayers. May you have a life full of God's love! :) "
Jim Kristoff $100.00 "God Bless you Gwynie."
Dave Amador $50.00 "Hey man, this is the least my family can do for you. Good luck and take of your little princess. Dave "
Nick Nyland $100.00 "As the father of a 10 year daughter and having another daughter on the way, I can't imagine the strength it takes to deal with this. My thoughts are with you. Nick (aka williewilliejuan)"
Anonymous $25.00
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Krystal Gresock $10.00 "May God continue to give your family strength!"
Brian Welch $25.00 "*"
Sally Krohn $50.00
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Rahela Moshref $100.00
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Anthony Sambrato $100.00 "God bless you Gwynie "
Richard Gerber $25.00 "Hey, Phil! Keep up the hard work, but don't forget to play! Thank you for telling me about Gwyn so I can help. I'll stay on your mailing list. I hope to see you in the Summit City again."
Anonymous Hidden
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Matthew Browning $25.00 "I was reading your blog on si.com, when I came across your post about your daughter. It truly touched me and I wish the best for both of you. Good luck on accomplishing your goals and tell your daughter she has more supporters than she will ever know. -Matt "
Rhian Owen $50.00 "love to you all"
John Bussa $50.00
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Anonymous $25.00
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Thomas & Myra Scott $50.00
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Todd Quinn $250.00 "Best of luck. You know me as Justin C. from Fannation. Keep fighting the good fight"
Adam Schaaf $25.00 "Hang in there man. God will take care of you and your family."
Dave and Joyce Owen $50.00
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Josh Hart $25.00 "I know this journey has just begun for you and your family, want to let you know you guys are in our thoughts and prayers during this fight. Keep your chin up!"
Jean Lewandowski $25.00 "I work with Kate Moore. It moved me to tears when I heard and read of Gwyneth's disease. I can not imagine nor will I pretend to understand what you and your little girl will and are going through. I can only pray for you and your family. God Bless You All! "
Leonora Starr $25.00 "We will keep Gwnie and your whole family in our prayers. May God grant you all a miracle. May Jesus be present through your struggles. The Starr Family"
David Booth $100.00
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Claire Beaney $100.00 "We are thinking of you all and hoping for a cure. Love from your Canadian family xxx"
Brian Hinson $250.00 "As the father of a 5 year-old daughter and a two-year old son, my heart and my prayers go out to you, Gwynie, and your entire family. Psalm 18:2"
Michael Frank $100.00
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Ken Jones $10.00 "The journey of a thousand miles begins with one step."
Joe Turner $50.00 "My daily prayer just became a little longer... Gwynie you're beautiful !!!"
Samantha Dikeolakos $25.00
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Mario Lima $250.00
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Lisa Wesley $25.00
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Saraya and Stephanie Chambers $25.00 "Saraya thinks that Gwynie has great tea parties!"
Aaron Pilcher $100.00
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Shara Compton $25.00 "We are sending you our love and prayers, and also praying for well-funded research and good science so that a cure comes quickly!"
Kathryn Lemish $50.00 "I pray a cure is found for your beautiful little girl."
Lance Benson $150.00 "Thinking of you all, Sending this contribution to the fund from Lan & the family (UK)"
Peggy Kuiper $50.00
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James Smith Hidden "Dear Phil, We will be praying for you. God's blessings as you deal with these difficult issues. Jim and Anne Smith"
Sajatta Wright $25.00
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Angie Warner $25.00
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Jason Place Hidden "Beautiful little girl! Your family will be in our prayers! "
Raeanna Moore $100.00
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Brad Stoffer $25.00 "My prayers are with you Gwynie! "
nancy flaherty $50.00
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Lincoln Financial Advisors $241.25
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Ron and Diana Spurgeon $25.00
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Connie and Michael Baker $50.00
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Alan and Virginia Simerman $50.00
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Mr. and Mrs Danny Logan $50.00
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Colin and Eileen Taylor $65.00
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Kristin Smith $10.00
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Rachel Goreham $50.00 "I pray every day that they find a cure."
Alena Gillum $100.00
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Erin McAtee $25.00 "You and your family will be in my thoughts and prayers!"
Colleen Pentsos $100.00 "I am praying for you, your family and the doctors! God's blessings Phil!"

Below is a video from the Children’s Tumor Foundation that demonstrates how your support benefits nearly 2 million people worldwide that are affected by Neurofibromatosis. I hope you’ll please take a few minutes to watch the video and perhaps be as motivated as we are to support The Children’s Tumor Foundation.

CTF Video Link

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