What: A 5K Run/Walk with the purpose of raising awareness of and funds for research and patient care for the set of disorders supported by the Children's Tumor Foundation (www.ctf.org), the neurofibromatoses (types I and II and schwannomatosis). These are a set of disorders that are quite common (approximately 1:2500-3000 people) and characterized by painful and disfiguring tumors in children and adults, bone problems, learning disabilities, deafness, and extreme pain. All funds raised will be donated directly to the CTF, which advocates for patients, supports research, and attempts to raise awareness of these disorders in the health care community and the world as a whole. Participants will also be encouraged to fundraise.
Mission Statement:
The Children's Tumor Foundation. is a non-profit 501(c)(3) medical foundation, dedicated to improving the health and well being of individuals and families affected by the neurofibromatoses (NF).
The mission of The Children's Tumor Foundation, is to:
• Encourage and support research and the development of treatments and cures for neurofibromatosis types 1 and 2, schwannomatosis and related disorders (hereafter collectively referred to as "NF");
• Support persons with NF, their families and caregivers by providing thorough, accurate, current and readily accessible information;
• Assist in the development of clinical centers, best practices and other patient support mechanisms (but not including direct medical care) to create better access to quality healthcare for affected individuals; and,
• Expand public awareness of NF to promote earlier and accurate diagnoses by the medical community, increase the non-affected population's understanding of the challenges facing persons with NF, and encourage financial and other forms of support from public and private sources.
When: Saturday, July 11, 2009 at 8:30 AM
Where: Northview Christian Life Church (www.nvcl.org)
5535 E. 131st St.
Carmel, IN 46033
The church campus has a self-contained course, which offers a unique combination of on-road and off-road running and walking.
Who: All ages, genders, and skill levels welcome. Prizes will be provided in age/gender categories. Early registration (prior to July 1st), $15.00, and late registration (July 1st to the day of the race), $20.00. Late registrants are not guaranteed a T-Shirt. Participants are encouraged to use the Donation Fundraising Page associated with the race. All funds raised by participants will be used by the CTF to support research, patient advocacy, and patient care for those affected by NF. When registering, please follow these instructions: Click the Register for this Event tab and click on the Register Now Tab. Create a free active.com account, then click on 2008 Running Events. Chasing Down the Cure should show on the page. Follow instructions from there. For a map of this unique course, please visit http://www.mapmyrun.com/run/united-states/in/carmel/381382990189.
For questions, please contact Brian Schmutzler at bschmutz@iupui.edu
Below is a video from the Children’s
Tumor Foundation that demonstrates how your support benefits nearly
2 million people worldwide that are affected by Neurofibromatosis. I
hope you’ll please take a few minutes to watch the video and perhaps
be as motivated as we are to support The Children’s Tumor
Foundation.
Adobe Flash Player is required to view
video.
 |
|
