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| HHT Research and Education Initative |
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| Help us educate doctors and continue vital research on Hereditary Hemorrhagic Telangiectasia (Osler-Weber-Rendu Syndrome). HHT is a long neglected national health problem that afflicts more than a million people worldwide. This genetic disorder affects blood vessels in the nose, brain, lungs, liver and GI tract. Twenty percent of those with HHT suffer death and disability from strokes and severe hemorrhages in the lung and brain. These can be prevented through early diagnosis, screening and treatment. Sadly, nine out of 10 HHT sufferers have not yet been diagnosed due to widespread lack of knowledge by medical professionals. By increasing physician awareness and expanding vital research, a reduction of health care cost can be achieved and deaths and disabilities can be prevented. We sincerely need your help. |
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Fundraising has ended.
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Total Donations: $11,562
Goal: $15,000
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