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One of the Team2Cure HD runners is Andrea. Her beautiful sister Cindy passed away on 01/23/2010 from complications of Huntington's Disease at the young age of 30. She is survived by her 16yr old daughter Darleen who is currently at risk for HD. Andrea made it her life's mission to create awareness and assist HDSA in raising funds for research in finding a cure for this horrific disease. She raised over $1700 in the 2010 Rock n Roll Marathon thanks to all of the love and support from her friends and family. Please open your hearts once again so that we can help FIND A CURE FOR HD. Andrea is HDSA's Hero of the Marathon. The Marathon will be the 1year anniversary of her sister, Cindy's passing. Let's celebrate on this day and make it a positive date on the calendar!! She has lost her life to this disease but she is still battling it in spirit. Please donate today. Thank you from all of our hearts. About Huntington's Disease Society of America -- Help for Today. Hope for Tomorrow.
The Huntington’s Disease Society of America is the largest 501(c)(3) non-profit volunteer
organization dedicated to improving the lives of everyone affected by Huntington’s Disease.
Founded in 1968 by Marjorie Guthrie, wife of folk legend Woody Guthrie who lost his battle
with HD, the Society works tirelessly to provide the family services, education, advocacy
and research to provide help for today, hope for tomorrow to the more than 30,000 people
diagnosed with HD in the United States and the additional 250,000 at-risk. Notably, HDSA
funds the HDSA Coalition for the Cure, a collaboration of 16 international researchers, as part
of the HD Drug Research Pipeline, which develops potential therapies to treat and eventually
cure HD; and HDSA also supports 21 Centers of Excellence at major medical facilities
throughout the U.S., where people with HD and their families receive comprehensive
medical, psychological and social services, in addition to physical and occupational therapy
and genetic testing and counseling. The Society is comprised of 39 local chapters and affiliates
across the country with its headquarters in New York City. Additionally, HDSA hosts more
than 140 support groups for people with HD, their families, caregivers and people at-risk, and
is the premiere resource on Huntington’s Disease for medical professionals and the general
public. |