| Dear Friends and Supporters,
On March 6, 2010, I will have the distinct pleasure and honor of running the Antarctica Marathon with the NF (Neurofibromatosis) Endurance Team. I am dedicating this event to the Children Tumor Foundation, specifically to my friend’s daughter GiGi, who has NF. GiGi is an eight-year-old with Type 1 Neurofibromatosis. Because of an optic glioma, an NF-related brain tumor, GiGi has lost vision in her left eye. MRI’s and Chemotherapy have become part of GiGi’s life. Her oncologist, among other specialists, must monitor the tumor in an effort to prevent the loss of vision in both eyes.
GiGi was diagnosed at an early age with this genetic disorder. Despite what she is going through GiGi is working hard to keep up with her peers academically. She is a happy child, a good friend to her teammates in school and a wonderful sibling to her twin brother, younger sister and older brother. At such a young age; she continues to show toughness, resilience and patience. I am honored to dedicate this race to her.
Neurofibromatosis encompasses a set of distinct genetic disorders that cause tumors to grow along various types of nerves and, in addition, can affect the development of non-nervous tissues such as bones and skin. Neurofibromatosis causes tumors to grow anywhere on or in the body. Neurofibromatosis (NF) has been classified into three distinct types: NF1, NF2 and Schwannomatosis. To learn more about NF at The Children's Tumor Foundation web site
CLICK HERE.
And to learn more about the Mighty NF Endurance Team and where we are funding research visit our endurance team page and click on the menu item on the left hand side "Team Fundraising Dollars at Work"
CLICK HERE.
Currently there is no cure or a completely effective treatment for NF; however with your help, we may find a cure one day. I would appreciate your help and any support you could provide for this worthy cause. One hundred percent of the funds raised will go directly to the Children Tumor Foundation (CTF).
GiGi will continue to do what eight-year-old girls do. As for me, I will continue to run, and continue to be thankful for God’s blessings. Imagine the cost of failed opportunities, lost hopes and forgotten dreams- We really cannot separate social and economic priorities if we want to have an inclusive society.
The article below highlights the NF story in Antarctica:
Click Here to see a recent article about my team efforts
Please join me in supporting a most humanitarian effort by making a donation to NF Endurance Team.
Donations are tax-deductible. If you prefer to donate by check versus online, kindly make your check(s) payable to the Children’s Tumor Foundation and send to the following address:
Children's Tumor Foundation
Attn: NF Endurance
95 Pine Street, 16th Floor
New York, NY 10005
Thank you for your support,
George
FOLLOW THE
TEAM'S PROGRESS ON CTF.ORG/NFETBLOG
|