| Prader-Willi syndrome (PWS) is a complex, life threatening medical disorder that affects the body's hormone system, muscle strength, cognition, learning, behavior and appetite regulating systems.
For persons with PWS, the brain does not regulate emotions and appetite normally. Behavior problems are common and worsened by an unrelenting, physiological drive to eat. Undiagnosed, unmanaged and without 24/7 supervision, Prader-Willi syndrome leads to obesity-related illness and premature death.
Although research has made great strides to increase our understanding of PWS, there is no treatment to control or even reduce the insatiable appetite, no medication to treat all of the behavior and psychiatric symptoms.
There is no cure yet, but with your help, there is hope! Please make a donation or sponsor your loved one with PWS today. Your donation, large or small, helps us provide the supports and services families need. Thank you! |
