|Thank you for taking the time to help us as we walk for a cure. My children, Ashley (12 years old) and Matthew (10 years old), and I all have Neurofibromatosis Type 1. Our team, Full of Hope, is walking to raise money for the Children’s Tumor Foundation which provides critical support services and funds research to find treatments and a cure for Neurofibromatosis (NF).
This is the second year for this event. Last year, the Children’s Tumor Foundation Staten Island Walk was an inspiring moment for me and my family. Though it was cool and the skies were grey with the threat of rain, our spirits were high. Each step renewed our hope that there will, one day, be a cure. Hundreds walking each step a step closer to a cure. Children racing to the finish line filled with pride knowing that they can help find a cure. Children and adults empowered and encouraged; filled with hope.
Last year as I watched my children walk and then at the end proudly display their medals I truly was filled with hope. As a mom of children who have NF, I know that there is uncertainty; tumors and other complications are a fact of life. Even though my children have so far had few complications I worry about their future. We have been lucky. I have seen the heartbreak experienced by the thousands of moms and dad whose children have experienced severe complications.
Every donation, no matter what size aids research and makes critical support services available to the thousands of children and adults affected by Neurofibromatosis. Every donation, every step means parents can find knowledgeable doctors for their children. Before getting the referrals provided by the Children’s Tumor Foundation it was hard finding doctors that knew more than me about NF. I will always remember having to spell and explain Neurofibromatosis to one of my children’s doctors. The Children’s Tumor Foundation means I can sleep a little better at night, knowing my children will always be able to find quality care.
Every dollar and every step brings us closer to a cure.
Thank you for helping and keeping us Full of Hope.
The Seery Family - Melanie, Pat, Ashley & Matthew