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| HHT Ride for Life |
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L Wayne “Doc” Hanks, an HHT member, in partnership with Lifeshare Blood Centers, is hosting a “Poker Run” and Replenishment Blood Drive to collect much needed blood and to raise funds and awareness for Hereditary Hemorrhagic Telangiectasia (HHT).
The “Poker Run” is basically where motorcycle riders visit different businesses and cards are drawn to make the best poker hand. The biker community uses this type of event to benefit a charity as well as enjoy riding and socializing with many riders in their area. Doc is a member of the Patriot Guard Riders and many of its members will be participating in this event.
Doc states, “I am one of many people in the world suffering from HHT, along with several generations of my family. My grandmother, mother, aunt, brother, sister, son, along with cousins, nieces, and nephews have been affected by this disease. I have lost my grandmother, mother, and aunt to HHT, and as time goes on, it progresses in the others. The worst case I have seen, is with a cousin of mine. At one point he was losing so much blood, he was receiving 6-7 pints of blood a week. “
Doc is hoping to continue to raise money and awareness as long as he is able. “I would appreciate your help in funding research and development to improve HHT patients’ quality of life, now and for the generations to come. Hopefully, one day through research, a cure will be developed, and HHT will be a thing of the past,” exclaims Doc.
What do you know about Hereditary Hemorrhagic Telangiectasia, (HHT)? It’s hard to spell, impossible to pronounce, and can be a Silent Killer.
- HHT is a long neglected national health problem that affects 1 in 5000 people or 75,000 United States citizens
- HHT is an inherited blood vessel disorder that affects blood vessels in the skin, lungs, brain, liver, nose, and gastrointestinal system
- HHT can result in stroke, hemorrhage, and death
- 20% of those affected by HHT will become disabled or die prematurely
- 9 out of 10 of the HHT population (68,000 US citizens) are not yet diagnosed due to widespread lack of knowledge by medical professionals and are therefore at risk
The good news is HHT tragedies can be prevented through early diagnosis and treatment. Your donation can play a part in helping us prevent tragedies.
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Total Donations: $3,475
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Goal: $3,000
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